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ME/CFS Mild → somewhat betterIll 21 months before improving or writing

Recurring sleep problems and brain fog with ME/CFS, somewhat better after quitting sport

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill before improving or writing
21 months
Last post
Aug 2026
In their words
  • Condition: ME/CFSSo i adressed following problem i will just paste here and was told that it sounds like PEM In context ↗
  • At worst: Mildafter several sessions my sleep deteriorates and fatigue/performance get worse In context ↗
  • Now: Somewhat betteri quit sports because i feel better and can enjoy everday life again. But i can't play football with my friends anymore In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

An 18-year-old male had recurring sleep problems for 1.5 to 2 years, starting after an illness. Bad phases brought waking 2 to 5+ times a night, brain fog, fatigue and dizziness. Running, football and strength training reliably worsened his sleep 1 to 3 days later, while two to three weeks without sport improved it. He quit sport, felt better and could enjoy everyday life, but could no longer play football with friends.

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Asking aboutAcorn 85179’s story

What they tried

Their words about each treatment
  • Valerian · HelpedValerian helps a bit In context ↗
  • other supplements · No changeValerian helps a bit, other supplements do not help In context ↗
  • Running, football and strength training · WorseRunning, football and strength training consistently make my sleep worse. In context ↗
  • Quitting sports / prolonged rest · Helpedi quit sports because i feel better and can enjoy everday life again In context ↗

Approaches: Pacing

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
about 1.5–2 years before Aug 2026recurring sleep problems began after an illnessThey started after an illness, but they come in phases rather than being constant. In context ↗Not stated
during bad phases, over the past 1.5–2 yearsbad sleep phases with brain fog, fatigue and dizzinesssometimes i feel sluggish and lay on the floor for hours In context ↗Mild
after 2–3 weeks without sportsstopping sport improved sleep significantlyAfter 2–3 weeks without sports, my sleep improves significantly (usually 7–8 hours though still wake up once or twice per night). In context ↗MildPacing and the energy envelope
several sessions after restarting regular exercisesleep deteriorated after restarting running, football and strength trainingWhen I start exercising regularly again, I initially feel fine, but after several sessions my sleep deteriorates and fatigue/performance get worse. In context ↗Mild
at time of writing, Aug 2026quit sport, felt better but cannot play football with friendsi quit sports because i feel better and can enjoy everday life again. But i can't play football with my friends anymore In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsduring bad phases I wake up 2–5+ times per night and sometimes struggle to fall back asleep In context ↗
  • Post-exertional malaiseThe effect can be delayed by 1–3 days and gets worse over time as i push through. In context ↗
  • Brain fogI can also get brain fog, fatigue and dizziness after several nights of poor sleep. In context ↗
  • POTS & dysautonomiaa tense/restless feeling, dizziness when standing In context ↗
  • Heart symptoms & palpitationsincreased nighttime heart rate In context ↗
  • Muscle weaknessthen i'm weak and slow despite actually being athletic In context ↗
  • Pain & fibromyalgiaI sometimes also experience prolonged muscle soreness In context ↗

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