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Long COVID Severe → somewhat betterIll 3 years before improving or writing

Long COVID neck pain and burning, often stuck in bed; somewhat better after pacing and LDN

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
3 years
Last post
Jun 2025
In their words
  • Condition: Long COVIDI also have had disturbing new popping and cracking in my neck after covid In context ↗
  • At worst: SevereI'm finding myself stuck in bed more and more often ... I can barely leave the house or move around in my house In context ↗
  • Now: Somewhat betterI have noticed the hot/burning feeling and popping/cracking noises have calmed a bunch down in the past few months In context ↗
  • Began after: COVIDpopping and cracking in my neck after covid
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

A Reddit user with long COVID after a COVID infection described neck cracking, a hot burning feeling at the base of the skull and arms that tired and hurt quickly, and was stuck in bed more and more often by April 2025. A Quest 3 VR headset let them explore and socialise lying down and cut pain by up to 30%. After about three years the neck symptoms calmed; they credited starting pacing and six months of LDN as possible reasons.

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What they tried

Also tried

Quest 3 vr headset· Helpedperscription inserts with blue light blockers· Helpedmeditation· HelpedIcing the base of my skull· Helpedsomething for nausea· Not said
Their words about each treatment
  • Quest 3 vr headset · Helpedvr can reduce my pain by up to 30% when I'm wearing it In context ↗
  • something for nausea · Not saidI take something for nausea beforehand In context ↗
  • perscription inserts with blue light blockers · HelpedI use perscription inserts with blue light blockers that help. In context ↗
  • meditation · Helpedpark myself there and meditate ... It also has a side effect of keeping my pain lower In context ↗
  • Icing the base of my skull · HelpedIcing the base of my skull seemed to help slightly. In context ↗
  • pacing · HelpedHave literally no clue what I'm doing differently other than the fact I started pacing In context ↗
  • LDN · HelpedBut I've been on LDN 6 months now so that could also be making a difference. In context ↗

Approaches: Pacing

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they wereAfter
onsetillness began after COVIDI also have had disturbing new popping and cracking in my neck after covid In context ↗Not stated
2025-04-25stuck in bed more and more, could barely leave the houseI'm finding myself stuck in bed more and more often ... I can barely leave the house or move around in my house In context ↗Severe
2025-06-27burning at the base of the skull and neck cracking calmed downthe hot/burning feeling and popping/cracking noises have calmed a bunch down in the past few months In context ↗Not statedLow-dose naltrexone

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiavr can reduce my pain by up to 30% when I'm wearing it In context ↗
  • Muscle weaknessmy arms get tired and in pain too fast to do a lot of hobbies In context ↗
  • Neuropathy & tinglingthe base of my skull feeling hot and like it's burning In context ↗

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