Long COVID after a severe lung flare, now somewhat better on diet and supplements
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Dec 2024
In their words
- Condition: Long COVID
no real signal against my long covid symptoms
In context ↗ - At worst: Mild
sauna and zone 2 exercise is helping me
In context ↗ - Now: Somewhat better
I am making progress…it’s slow steady progress…some back sliding
In context ↗ - Began after: COVID
my long covid symptoms
In context ↗ - Says they never had: POTS & dysautonomia
I have been a heavy user of IVM and never had POTS!
Read from 12 of their posts and comments; links to the 10 this page draws on
Summary
A Reddit user with long COVID described slow, steady progress on a self-managed stack: a nine-year ketogenic diet, zone 2 exercise, sauna, ozone therapy, topical ivermectin and supplements. A 5 mg dose gave about six hours of near-normal relief, then a severe lung flare; they cut to 1 mg and skipped doses. By their last post they felt much better for two days and planned a trip to the Philippines for the Sinovac vaccine.
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What they tried
What they credit
Also tried
Their words about each treatment
- keto · Helped
Keto is great! Okay to occasionally have a carb up…once you have done it like me for 9 years
In context ↗ - zone 2 exercise · Helped
sauna and zone 2 exercise is helping me…it’s only when I don’t keep pushing I get worse and back slide
- steam sauna · Helped
lastly steam sauna really helps getting hot for 10-12 minutes every day to 2X a day
In context ↗ - ozone therapy HOCATT · Helped
ozone therapy HOCATT and monolaurin with zinc and quercitin and EGCG may be having an effect
In context ↗ - monolaurin · Helped
monolaurin with zinc and quercitin and EGCG may be having an effect along with the Novavax vaccine
In context ↗ - zinc · Helped
zinc with quercitin and egcg should be a staple
In context ↗ - topical ivermectin · Helped
I found the topical or really work well to bind spike proteins and clear my lungs
In context ↗ - Lumbrokinase and nattokinase · Not said
it’s not going to work for the brain so I take mercola brand Lumbrokinase and nattokinase
In context ↗ - triple therapy · Not said
Lumbrokinase and nattokinase with my triple therapy
In context ↗ - dry fasting · Helped
got the proper rest and dry fasting during sleep to help recover then did it again
In context ↗ - Novavax · No change
I did the Novavax about 4 weeks ago and no real signal against my long covid symptoms?
In context ↗ - nicotine · No change
I wish it helped me…no signal after 30 days with 7mg and 21mg
In context ↗ - rapamycin · Worse
I did two doses at 5mg but have delayed the 3rd dose now…I’ve had very significant flair in symptoms
In context ↗
Approaches: Alternative therapies · Diet · Exercise and activity · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | Long COVIDmy long covid symptomsIn context ↗ | Not stated | |
| before 2024-11-18 | backslide after a cold virus, could not exercisesome back sliding when I caught a cold virus and could not exerciseIn context ↗ | Not stated | |
| 2024-11-18 | slow, steady progress on their own stackI am making progress…it’s slow steady progressIn context ↗ | Mild | |
| 2024-12-09 | severe lung flare after second 5 mg rapamycin doselast week too 5mg and 2 days later had the worse flair ever! Lungs were so bad!In context ↗ | Mild | Rapamycin / sirolimus |
| 2024-12-20 | feeling much better after cutting rapamycin to 1 mg and skipping dosesskipping the dose and this week feeling much better the last 2 daysIn context ↗ | Mild | Rapamycin / sirolimus |
Adverse events
- Rapamycin / sirolimus“last week too 5mg and 2 days later had the worse flair ever! Lungs were so bad!” In context ↗ Made symptoms worse
- Rapamycin / sirolimus“I did a 2nd dose of 5mg and had no good days it just went right to a severe HERXE!” In context ↗ Herx / die-off reaction
Symptoms mentioned
Their words about their symptoms
- Brain fog
the brain fog and lung congestion started to settle back in
In context ↗
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