Bedbound for 30 days with long COVID, now much better with rest and pacing
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 months
- Last post
- Dec 2022
In their words
- Condition: Long COVID
Got Covid in mid September ‘22. Been LH’ing ever since (about 9 weeks).
In context ↗ - At worst: Severe
Bedbound for the first 30 days. Housebound for a month after that.
In context ↗ - Now: Much better
Still can’t work but I feel like I’m getting closer to having my life back.
In context ↗ - Began after: COVID
Got Covid in mid September ‘22. Been LH’ing ever since (about 9 weeks).
In context ↗
Read from 47 of their posts and comments; links to the 19 this page draws on
Summary
A 25-year-old man was bedbound for the first 30 days after COVID-19 in September 2022. He credits time, rest and pacing, with nattokinase, cold showers, water and supplements, and by ten weeks felt about 85% of normal, doing light gym workouts, though he was still out of work with fatigue, breathlessness, brain fog and chest pain. A J&J vaccine changed nothing; nattokinase caused a few days of body and chest pain.
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What they tried
What they credit
Also tried
Their words about each treatment
- J&J vaccine · No change
It had no noticeable effect on my symptoms for me.
In context ↗ - Inhaler · Not said
Doc prescribed me an inhaler but I only use it when I really need it, which isn’t much.
In context ↗ - Time · Helped a lot
Time has done more for me than any prescription, vitamin, supplement or therapy I’ve tried.
In context ↗ - Nattokinase · Helped
It helps a little. First few days I felt random pains throughout my body and maybe a little worse, then it started making me feel *slightly* better.
In context ↗ - Melatonin · Helped
What’s helped me so far: Nattokinase, melatonin
In context ↗ - Claritin · Helped
When my symptoms were really bad, I took Claritin 10-20 mg and it would help *slightly*.
In context ↗ - Ashwagandha · Helped
ashwagandha (helped a lot w/ stress and anxiety of being sick and being out of work)
In context ↗ - Vitamin D · Helped
every vitamin known to man
In context ↗ - Vitamin B · Helped
rhodiola + vitamin B + lions man’s for energy and focus
In context ↗ - Vitamin C · Helped
NAC, vitamin C, Quercetin for immune system boosts
In context ↗ - Zinc · Not said
Doing but idk if it’s helping ... Zinc
In context ↗ - Magnesium · Not said
Doing but idk if it’s helping ... Magnesium
In context ↗ - Lions mane mushrooms · Helped
mushroom blends like lions mane for brain fog
In context ↗ - Ivermectin · No change
Tried, don’t think it helped ... Ivermectin
In context ↗ - Prednisone · No change
Tried, don’t think it helped ... Prednisone
In context ↗ - Antibiotics · No change
Tried, don’t think it helped ... Antibiotics
In context ↗ - Pepcid · No change
Tried, don’t think it helped ... Pepcid
In context ↗ - Plaquenil (hydroxychloriquine) · No change
Tried, don’t think it helped ... Plaquenil (hydroxychloriquine)
In context ↗ - Quercetin · Helped
Quercetin for immune system boosts
In context ↗ - Pacing · Helped
pacing and resting often
In context ↗ - Cold showers · Helped
turn my shower on as cold as possible at the end ... helped my heart and breathing regulate itself
- Healthy diet · Helped
healthy diet and melatonin for sleep probs
In context ↗ - Exercise at the gym / jogs / long walks · Helped
This week I returned to exercise. I joined a gym and have slowly increased the intensity with each workout. No PEM.
In context ↗ - Benadryl · Helped
melatonin/Benadryl for sleep
In context ↗
Approaches: POTS medication · Alternative therapies · Anticoagulants · Pacing · Physiotherapy and rehab · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| September 2022 | COVID-19 followed by 30 days bedriddenI’ve made a lot of progress. I used to be bedridden for 30 days.In context ↗ | Severe | |
| October 2022 | slowly started to get better; housebound for a monthBedbound for the first 30 days. Housebound for a month after that.In context ↗ | Moderate | Time and spontaneous remission |
| 2022-10-29 | about 85% recovered, back at work full timeI’m back at work full time and doing my best.In context ↗ | Mild | Time and spontaneous remission |
| 2022-10-30 | felt awful for a day or two after one workoutI worked out once last week and felt awful for a day or 2 afterwards.In context ↗ | Mild | |
| 2022-11-16 | out of work again after not being able to handle itI’m out of work again now because I couldn’t handle it but I expect to continue my recovery process slowly.In context ↗ | Mild | |
| 2022-11-22 | walking 8,000-10,000 steps a day and jogging with heart and breathing about 85% normalWalking 8,000-10,000 steps a day(big progress)In context ↗ | Mild | Time and spontaneous remission |
| 2022-11-30 | joined a gym, light workouts, no PEM, depression and sleep improvingThis week I returned to exercise. I joined a gym and have slowly increased the intensity with each workout. No PEM.In context ↗ | Mild | Time and spontaneous remission |
| 2022-12-01 | getting better, still not workingI am getting better nowIn context ↗ | Mild |
Adverse events
- Nattokinase“First few days I felt random pains throughout my body and maybe a little worse, then it started making me feel *slightly* better” In context ↗ Made symptoms worse
- Nattokinase“Yea it made my body hurt specially in my chest for a several days then it got better” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
current symptoms are brain fog, fatigue, heart/chest pain, shortness of breath, PEM, and occasional insomnia
In context ↗ - Brain fog
My brain fog is lingering bad but everything is *slowly* returning to normal.
In context ↗ - Heart symptoms & palpitations
Palpitations, chest pains, rapid heart beat, etc.
In context ↗ - Breathlessness
My shortness of breath has improved greatly.
In context ↗ - Sleep problems
occasional insomnia
In context ↗ - Anxiety & low mood
My depression is almost gone.
In context ↗ - Light & noise sensitivity
some of them include sensitivity to noise, blurry vision, brain fog, depression, and sometimes sleep probs
In context ↗ - Headaches & migraine
headaches, loss of appetite
In context ↗
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