Neurological long COVID with brain fog and dizziness, somewhat better with time and work
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 1 year
- Last post
- Jun 2022
In their words
- Condition: Long COVID
So basically year ago i got covid which started all my neurological issues.
In context ↗ - At worst: Mild
Decided to get a job to get money for some experimental treatments, supplements.
In context ↗ - Now: Somewhat better
I must say i feel a lot better by just having a job and not thinking about how life is unfair all the time.
In context ↗ - Began after: COVID
year ago i got covid which started all my neurological issues
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
After COVID in 2021 this person developed neurological long COVID, with brain fog, palpitations, breathlessness, dizziness, visual snow and other vision problems, and said doctors did not believe them. They credited time and getting a job with feeling better, and by month 12 the blood pooling that made their feet go cold had gone. By June 2022 they felt a lot better and were working, though visual snow, tinnitus and brain fog remained.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- steroid · No change
tried a steroid for inflammatory conjuvitis but it didnt do anything
In context ↗ - beta blocker · Worse
Once i took a beta blocker to lower heart rate and i couldnt feel it i thought i was dying.
In context ↗ - time · Helped
Im on month 12. It feels like its gone.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | COVID-19 infection started neurological symptomsyear ago i got covid which started all my neurological issuesIn context ↗ | Not stated | |
| April 2022 | worst symptom burden: brain fog, dizziness, visual disturbances, breathlessnessBrainfog ( Somedays Mild somedays Severe)In context ↗ | Mild | |
| 2022-05-11 | POTS-like blood pooling no longer happening by month 12Im on month 12. It feels like its gone.In context ↗ | Mild | Time and spontaneous remission |
| 2022-06-18 | felt a lot better after getting a job; visual snow, tinnitus and brain fog remainedI must say i feel a lot better by just having a job and not thinking about how life is unfair all the time.In context ↗ | Mild |
Adverse events
- Beta-blockers (unspecified)“Once i took a beta blocker to lower heart rate and i couldnt feel it i thought i was dying. I couldn't feel my pulse on my neck ... Went in flight or fight like 3 times that day.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Breathlessness
Shortness of Breath (the urge to take a full breath)
In context ↗ - Brain fog
Brainfog ( Somedays Mild somedays Severe)
In context ↗ - POTS & dysautonomia
Im on month 12. It feels like its gone.
In context ↗ - Light & noise sensitivity
Mild Light Sensitivity
In context ↗ - Tinnitus
Pulsatile tinnitus
In context ↗
Ask Miruvor AI
Similar stories
-
Unable to walk around house with long COVID, much better after pacing and antihistamines
A Canadian man with long COVID for about three years was unable to walk around the house for the first two years, with constant migraines, brain fog and PEM. From year three, pacing, rest, stress reduction, H1/H2 antihistamines, hydroxyzine for sleep,…
-
Profoundly severe ME/CFS for about five years, now somewhat better but still severe
Dew 49079 was profoundly severe with ME/CFS for about five years, and once slept a week around the clock after overdoing it. They said they snapped out of it one day after five years, 'nothing I did', and have been out of the dark about a year, though it…
-
Bedridden for years with ME/CFS, now housebound and moderate after time and rest
A person with ME/CFS for six or more years was severe and bedridden for several years, then gradually improved to housebound and moderate. They credited time, rest and harm reduction rather than one treatment. Nicotine patches, microdosed psilocybin, pacing…
-
Bedridden with long COVID for three years, now nearly back to normal with time and pacing
Caught COVID in December 2019, before lockdown, and was mostly bedridden for three years as symptoms worsened. From year three she improved slowly, crediting time, rest, pacing, a gradual walking programme, daily antihistamines and gabapentin. A 2023…