Long COVID brain fog and muscle weakness for 18 months, now almost back to normal
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 18 months
- Last post
- Mar 2022
In their words
- Condition: Long COVID
I had Long Covid for about 11 months and was almost 99% fine.
In context ↗ - At worst: Mild
The worst was this constant feeling of being ill that makes it hard to focus on any task.
In context ↗ - Now: Near normal
I consider myself healed from long covid ... occasionally I get two or three days with brain fog that feels just like long covid, but they go away
In context ↗ - Began after: COVID
I had Long Covid for about 11 months and was almost 99% fine.
In context ↗
Read from 55 of their posts and comments; links to the 10 this page draws on
Summary
They got COVID in March 2020 in Brazil; brain fog, muscle weakness, nausea, headaches, insomnia and a constant ill feeling came in waves for 18 months. Symptoms largely cleared a week after an MMR shot in April 2021, though they call it possibly coincidence, and a Jansen COVID vaccine in July 2021 was followed by a two-month relapse. By March 2022 they felt healed, apart from occasional brief brain fog.
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What they tried
What they credit
Also tried
Their words about each treatment
- Flu vaccine · No change
I have taken the Flu vaccine about one year ago ... This flu vaccine had zero effect on my Long Covid issue
In context ↗ - Vitamin D · No change
I have taken Vitamin D for about a year with no influence on my Long Covid issue
In context ↗ - Euthyrox · No change
I have taken thyroid pills (Euthyrox) for about a year with no influence on the Long Covid issue
In context ↗ - MMR vaccine · Helped a lot
I took the MMR jab (often given to kids) and all my symptoms were gone
In context ↗ - Jansen (Johnson & Johnson) Covid vaccine · Much worse
eventually I took the real Covid vaccine (Jansen). That gave me a major relapse that lasted about 2 months
In context ↗
Approaches: Vaccination
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| March 2020 | COVID infectionWhen I got sick it felt more like a bad flu. After a few days I felt normal again.In context ↗ | Not stated |
| 2020 | long COVID symptoms in wavesIn the beginning there was bad days and very bad days. However every month it decreased.In context ↗ | Mild |
| early 2021 | gradually improving month by monthI had Long Covid for about 11 months and was almost 99% fine.In context ↗ | Mild |
| early 2021 | crashed back after a COVID reinfectionthe effects of Long Covid came back, as if I had returned many months of progressIn context ↗ | Mild |
| April 2021 | symptoms cleared after an MMR shotI woke up with no brain fog at all. ... I felt as I was before Covid.In context ↗ | Near normal |
| July 2021 | major relapse after the Jansen COVID vaccineThat gave me a major relapse that lasted about 2 months.In context ↗ | Mild |
| 2022-03-16 | healed, with occasional brief brain fogI consider myself healed from long covid. ... occasionally I get two or three days with brain fog that feels just like long covid, but they go awayIn context ↗ | Near normal |
Adverse events
- Vaccines used as treatment (BCG, staph toxoid, JE)“The next day all the Long Covid effects came out stronger, as bad as they where in 2020. Weak muscles, brain fog ... That persisted for four days.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“During the first couple days after the shot I felt exactly what everybody feels: pain in the arm, headaches and dizziness.” In context ↗ Side effects
- COVID vaccination as treatment“Then I took a shot of the Covid vaccine (Jansen) and had a huge flair up that lasted 2 months.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
occasionally I get two or three days with brain fog that feels just like long covid, but they go away
In context ↗ - Muscle weakness
Weak muscles, brain fog (enough to feel everything distant), nausea, tiredness, insomnia, head pressure all over
In context ↗ - Headaches & migraine
About every 7 days I feel “tired with no reason” and some head pressure.
In context ↗ - Flu-like symptoms
The worst was this constant feeling of being ill that makes it hard to focus on any task.
In context ↗ - Sleep problems
Also insomnia and hyperfocusing on symptoms.
In context ↗ - Pain & fibromyalgia
I’m almost clear of all bad effects of long covid BUT muscle pain is in for me.
In context ↗ - Anxiety & low mood
ocasional panic attacks in the beginning, ocasional sadness for no reason, general apathy during brain fog
In context ↗ - Heart symptoms & palpitations
Regarding pain in the left chest area, I had it occasionally.
In context ↗
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