Bedbound with ME/CFS, now almost back to normal after supplements and herbs
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 months
- Last post
- Feb 2014
In their words
- Condition: ME/CFS
I had fatigue after a long bout with Mono/Ebstienn bar virus.
In context ↗ - At worst: Severe
I had to drop out of school and I Lost all my credits this semester because I couln't get out of bed
In context ↗ - Now: Near normal
My fatigue is almost completely gone! ... Just in the past week have I begun to live a normal life again.
- Began after: glandular fever or EBV
diagnosed with Mononucleosis via blood-test Oct. 23rd 2012
Read from 16 of their posts and comments; links to the 13 this page draws on
Summary
At 19, Pebble 90850 developed mononucleosis in October 2012 and was bedbound, dropped out of college and was hospitalised twice for minor paralysis. They tried piracetam, then a broad supplement and herbal regimen including Bacopa, rhodiola, D-ribose, CoQ10 and vitamin D, and said their fatigue was almost gone and they felt normal again. A relapse after exercising too hard recovered in a day; a dexamethasone pack later made them feel incredible.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- Piracetam · Helped a lot
even a single dose (1.6g) of Piracetam can alleviate nearly all my fatigue
In context ↗ - IV Cortisone shot · Helped
Started to feel less-sick about 3 days after cortisone shot
In context ↗ - Stimulants (caffeine, amphetamines) · No change
when I was really sick the first few weeks, stimulants like caffeine or amphetamines had little-no effect
In context ↗ - mega doses of vitamin C · Helped
I've had good success from just using mega doses of vitamin C
In context ↗ - DHEA · Helped
DHEA ------------------- 50mg in the morning
In context ↗ - D-ribose · Helped
D-ribose---------------- 5g 2-3 times a day (10g if i feel like shit)
In context ↗ - CoQ10 · Helped
COQ10 ---------------- 200mg in the morning with food
In context ↗ - Vitamin D3 · Helped
Vit D3 ------------------1000iu in the morning with food
In context ↗ - Tanning in the Sun · Helped
Tanning in the Sun - just do it. it has always made me feel better.
In context ↗ - Bacopa Monnieri · Helped a lot
**Bacopa Monnieri** ----2 capsules 2-3 times a day (this helps surprisingly way more than it should
In context ↗ - Rhodiola Rosea · Helped
**Rhodiola Rosea** -----1 gram 1-2 times a day
In context ↗ - Advil / Aleve · Helped
I slam it with NSAIDs and the Piracetam - I did this for 5 days strait and since then I have steadily improved
In context ↗ - Melatonin · Not said
melatonin at night for sleep support
In context ↗ - B-vitamin complex · Helped
B-vitamin complex
In context ↗ - Trimethylglycine (TMG) · Helped a lot
would you think that trimethylglycine would help your low methylation? IME it has helped tremendously.
In context ↗ - Antioxidants · Worse
the anti-oxidants that I was taking so much when I first got sick actually made me worse in the long run
In context ↗ - Dexamethasone pak · Helped a lot
however i've been on it for 48 hours and feel incredible
In context ↗ - Ashwagandha · Helped a lot
ashwagandha + Bacopa has helped me amazingly too. I take them at night.
In context ↗ - dissolvable form of T3 · Helped
i take some a dissolvable form of T3 that absorbs really quickly and I feel better within about 20minutes-hour
In context ↗ - L-Theanine · Not said
I like it before bed. good dreams.
In context ↗
Approaches: Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2012-10-18 | mononucleosis onset; bedbound and dropped out of collegeI had to drop out of school and I Lost all my credits this semester because I couln't get out of bedIn context ↗ | Severe | |
| 2012-12-09 | piracetam temporarily relieved fatigueeven a single dose (1.6g) of Piracetam can alleviate nearly all my fatigueIn context ↗ | Moderate | |
| 2013-01-07 | fatigue almost gone with supplements and herbsMy fatigue is almost completely gone!In context ↗ | Near normal | |
| 2013-01-20 | relapsed after exercising too hard; recovered in about a dayI myself just had a relapse because I exercised too hard. But still I can recover in about a day.In context ↗ | Mild | |
| 2013-01-28 | felt incredible after a dexamethasone packi've been on it for 48 hours and feel incredibleIn context ↗ | Near normal | Corticosteroid pulses |
Adverse events
- “I think the anti-oxidants that I was taking so much when I first got sick actually made me worse in the long run” In context ↗ Made symptoms worse
- Piracetam“yeah generally if i take it at night it kinda wakes my brain up and causes minor insomnia. I just don't take it after 4pm or so.” In context ↗ Insomnia from treatment
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I myself just had a relapse because I exercised too hard.
In context ↗ - Pain & fibromyalgia
Whenever my arms and legs start aching and i feel like shit
In context ↗ - Temperature regulation
always cold ever since I got mono
In context ↗ - Muscle weakness
Hospitalized twice for a total of 4 days (for minor paralysis)
In context ↗ - Flu-like symptoms
swelling in the lymph nodes contributes to fatigue
In context ↗
Ask Miruvor AI
Similar stories
-
Long COVID, few hundred steps at worst, near normal after triple therapy and ivermectin
Acorn 58749 fell ill in July 2021, two weeks after a second Pfizer shot, with tinnitus, muscle twitching and wasting, weakness and PEM; at one point they could walk only a few hundred steps. Triple therapy (two antiplatelets plus an anticoagulant) from…
-
Unable to stand or walk across the room with ME/CFS, now much better on supplements and NaturDAO
Tulip 50673's ME/CFS came from latent EBV after some 30 years of wear, with MCAS and histamine intolerance on top. They retired early, unable to stand or walk across the room. Supplements and NaturDAO brought a night-and-day change; they now do yard work and…
-
Bedridden with long COVID, now nearly back to normal after a maraviroc/prednisone protocol
Alpine 25388 caught covid in April 2020 and had a severe first year with fatigue, brain fog, palpitations, chest pain and formication; their worst relapse in January 2021 left them bedridden for most of that month. Two Pfizer shots in 2021 worsened their…
-
Bedridden then housebound with long COVID, somewhat better on low-dose naltrexone
Long covid began around mid-2023 after a COVID infection. He was bedridden for months, then had ups and downs and became mostly housebound with fatigue, PEM, depression, brain fog and POTS, eventually unable to work. Low-dose naltrexone, mestinon, Aimovig…