Bedbound with long COVID two years, 40% better with rest and time off, then relapsed
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Oct 2026
In their words
- Condition: Long COVID
I’ve had LC for almost four years now
In context ↗ - At worst: Severe
For two years I was bed bound and my symptoms were very severe.
In context ↗ - Now: Relapsed
I would say I’ve recovered about 40% ... I went into a crash worse than anything I had ever experienced.
- Began after: COVID
I got Covid 4 times, because I was an “essential worker” and around people constantly.
Read from 21 of their posts and comments; links to the 15 this page draws on
Summary
Tundra 79400, a former child welfare worker, developed long COVID after four COVID infections and was bedbound for two years, leaving work for disability. She recovered about 40% with rest and time off work. She suspects a kidney infection and antibiotics may have triggered months of severe constipation and pain; homeopathic supplements cost a small fortune and did little. A 2026 pregnancy and newborn brought her worst crash, which has only slightly eased.
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What they tried
What they credit
Also tried
Their words about each treatment
- mushroom blend (powders, capsules, oils) · No change
I’ve tried powders, capsules, and oils and I can’t say I noticed any differences at all in my symptoms.
In context ↗ - PT · No change
tried PT and I’ve had no luck after three years
In context ↗ - anti-Inflammatory diet · No change
I tried an anti-Inflammatory diet for a month and saw no results.
In context ↗ - anti-histamine diet · No change
I then tried an anti-histamine diet for 5 weeks for the first time and saw no results.
In context ↗ - low FODMAP diet · No change
I am on my 5th week of a low FODMAP diet and I’m seeing no results.
In context ↗ - probiotic · Not said
I do take a probiotic and a colostrum powder as well as mirilax and aloe vera juice.
In context ↗ - mirilax · No change
I do take a probiotic and a colostrum powder as well as mirilax and aloe vera juice ... nothing I’m trying over the counter is helping
In context ↗ - Aloe Vera juice · Helped
Aloe Vera juice is the only thing that alleviates the burning, swollen pain I get in my intestines.
In context ↗ - rib cage stretches · Helped
I found this to be very helpful.
In context ↗ - antibiotics · Worse
placed on an antibiotics course, which didn’t work so the put me on another one. And then the stomach nightmare began.
In context ↗ - supplements from a homeopathic doctor · No change
I spent a small fortune on supplements that I’ve been taking for 6 weeks and seen little to no improvement.
In context ↗ - blood pressure meds · Helped
I didn’t get anywhere, I didn’t get answers or solutions except some blood pressure meds that do their job.
In context ↗ - leaving work to rest and focus on health · Helped
I do believe taking the time away and focusing on my health brought forth good improvements, although I am not fully recovered.
In context ↗
Approaches: Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| early 2022 | COVID infections lead to long COVID; leaves workMy LC was severe enough that I left work almost three years ago and haven’t been able to return.In context ↗ | Severe | |
| 2022-2024 | bedbound with very severe symptoms for two yearsFor two years I was bed bound and my symptoms were very severe.In context ↗ | Severe | |
| before April 2025 | crash after a period of improvementI had a time frame of improvement where I thought I was actually getting better. Followed by a crash that made me realize I was not in fact getting better.In context ↗ | Not stated | |
| 2025 | about 40% recovered, productive days, can run errandsOnly in the last year have I been able to make a little progress. I would say I’ve recovered about 40%In context ↗ | Moderate | Radical rest |
| August 2025 | kidney infection and two antibiotic courses, then severe GI flareI was in the ER for an advanced kidney infection and placed on an antibiotics course, which didn’t work so the put me on another one. And then the stomach nightmare began.In context ↗ | Moderate | |
| late 2025 | pregnancy with bad digestive problems, weakness and painThe pregnancy was the nightmare I knew it would be with bad digestive problems, extreme weakness and fatigue and horrible body pain.In context ↗ | Moderate | |
| late June 2026 | newborn sleep deprivation crash, needs shower chair and walkerI went into a crash worse than anything I had ever experienced. I have never had that level of chronic pain. I had to use a shower chair and walkerIn context ↗ | Severe | |
| October 2026 | crash has eased a little but daily struggle continuesThankfully that crash has let up a little bit and my little guy is sleeping much better ... but everyday is still a battle of misery.In context ↗ | Severe |
Adverse events
- Antibiotics (unspecified)“placed on an antibiotics course, which didn’t work so the put me on another one. And then the stomach nightmare began.” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
my brain fog has slightly improved
In context ↗ - Gut problems
I’ve had extreme constipation and nothing I’m trying over the counter is helping
In context ↗ - Pain & fibromyalgia
I have never had that level of chronic pain
In context ↗ - Sleep problems
I’m still not getting enough sleep
In context ↗ - Headaches & migraine
I had that permanent headache issue my first two years and then it lightened up on me
In context ↗ - Muscle weakness
I’m not having to use my walker or lacking as much strength
In context ↗
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