Long COVID
Moderate → much betterIll 15 months before improving or writing
Months housebound with long COVID, now working full time
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 15 months
- Last post
- Jan 2024
In their words
- Condition: Long COVID
As for treating my LC, there hasn’t been anything tried and true that has worked for me.
In context ↗ - At worst: Moderate
Been with LC for a year, and was in the house for months.
In context ↗ - Now: Much better
I’ve been working full time, 5 days a week for a about four months. Been with LC for a year, and was in the house for months.
In context ↗ - Began after: COVID
Been with LC for a year, and was in the house for months.
In context ↗
Read from 11 of their posts and comments; links to the 10 this page draws on
Summary
Creek 20686 developed long COVID in late 2022 and spent months housebound with breathlessness, chest pain, an elevated heart rate and a swollen tongue. They said nothing tried and true had worked for them, relying on rest, a low-histamine diet, magnesium, vitamins and compression socks for individual symptoms. By mid-2023 they were working full time; by early 2024 the tongue swelling was occasional.
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What they tried
Also tried
magnesium glycinate· Helpedtopical magnesium oil· HelpedBenadryl· No changeDaily Multi-Omega 3 gummy vit· No changeVit C· No changeB12· No changetiger balm· No changeaspirin· Not saidprioritizing rest and sleeping· Not saidNo gluten, very limited dairy· Not saidNo gluten, very limited dairy· Not saidlow histamine diet· Not saidcompression socks· Not saidbreathwork· Not said
Their words about each treatment
- Benadryl · No change
The Benadryl knocked me out for the night, but when I woke up this morning it’s still the same deal.
In context ↗ - magnesium glycinate · Helped
What works for me sometimes is taking magnesium glycinate
In context ↗ - topical magnesium oil · Helped
or using a topical magnesium oil on my legs
In context ↗ - aspirin · Not said
I haven’t taken much aspirin lately, I wonder if adding it to a consistent regimen would make a difference for me.
In context ↗ - Daily Multi-Omega 3 gummy vit · No change
I take a Daily Multi-Omega 3 gummy vit (Vit A, C, D3, E, Niacin, Vit B, Zinc, Sodium & Fish Oil).
In context ↗ - Vit C · No change
When I remember, I’ll take Vit C and B12.
In context ↗ - prioritizing rest and sleeping · Not said
I’ve been working at prioritizing rest and sleeping
In context ↗ - No gluten, very limited dairy · Not said
No gluten, very limited dairy
In context ↗ - low histamine diet · Not said
I try at low histamine
In context ↗ - compression socks · Not said
I use compression socks when my veins in my feet hurt
In context ↗ - tiger balm · No change
I thought some tiger balm and compression socks would ease the pain but boy was I wrong.
In context ↗ - breathwork · Not said
I was trying breathwork but abandoned it
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| late 2022 | long COVID began with heavy, jumping veins in the legs; still able to work on essaysTwo nights later I started feeling a jumping feeling of the veins in my legs, and they felt significantly heavier.In context ↗ |
| December 2022 – January 2023 | mostly in the house for months with breathlessness, palpitations, pain and broken sleepBeen with LC for a year, and was in the house for months.In context ↗ |
| January 2023 | crashed after getting a new puppy and pushing past her limitsI’ve had to push myself way beyond my limits ... I feel like garbage, and I’m really in a lot of pain.In context ↗ |
| February 2023 | sharp right chest pain and breathlessness, only able to lie on her backA few nights ago I realized a really sharp and heavy pain in my right chest area, along with shortness of breath.In context ↗ |
| mid 2023 | able to work full time five days a week againI’ve been working full time, 5 days a week for a about four months.In context ↗ |
| January 2024 | tongue swelling now only occasional and not causing major issuesIt doesn’t occur that bad for me anymore thankfully. When it is swollen it’s just temporary and doesn’t really cause any major issues for me anymore.In context ↗ |
Adverse events
- Diphenhydramine (Benadryl)“The Benadryl knocked me out for the night” In context ↗ Side effects
Symptoms mentioned
BreathlessnessHeadaches & migraineMast cell (MCAS) & allergiesPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseTinnitus
Their words about their symptoms
- Post-exertional malaise
I’ve had to push myself way beyond my limits and have been moving more than I have in the past few months.
In context ↗ - Breathlessness
I still have it but thankfully it’s not as bad.
In context ↗ - POTS & dysautonomia
getting out of bed, my heart rate shot up nearly 40 bpm
In context ↗ - Pain & fibromyalgia
When I’m having leg pains I’ll take magnesium glycinate 400 mg before bed.
In context ↗ - Headaches & migraine
As for my head pain, I just suffer through it
In context ↗ - Tinnitus
all I hear is constant ringing in my left ear
In context ↗ - Mast cell (MCAS) & allergies
When I looked in the mirror, my tongue was completely swollen
In context ↗