ME/CFS
Outcome unclearNeeds ongoing treatment
ME/CFS with joint pain and vertigo, trying gluten-free diet and removing an LED bulb
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
Me? I'd rather sit in the shower and save the energy to stand and make a peanut butter sandwich
In context ↗ - At worst: Mild
I walk a little daily but don't otherwise exercise.
In context ↗
Read from 32 of their posts and comments; links to the 17 this page draws on
Summary
A Reddit user with ME/CFS described joint pain that disappeared within two weeks of giving up gluten and vertigo that stopped after they removed a bright LED bulb. They used magnesium for twitches, herbal sleep aids, slippery elm for a sore throat, and hemp protein after pea protein upset their digestion. They still reported walking a little daily and water walking once a week.
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What they tried
Also tried
Throat Coat tea / slippery elm· HelpedMagnesium lotion· HelpedLight stretching· HelpedEpsom salt bath· HelpedNeilmed sinus rinse· HelpedGluten-free diet· HelpedRemoving bright LED bulb· HelpedMagnesium supplement· HelpedHerbal sleep aids· HelpedOlive oil in breakfast smoothie· HelpedHemp protein· HelpedDecreasing carbohydrate intake· HelpedFisherman's Friend lozenges· HelpedWitch hazel· HelpedSilk eye mask· HelpedPea protein· WorseWalking a little daily· Not saidWater walking· Not said
Their words about each treatment
- Throat Coat tea / slippery elm · Helped
The herbal 'Throat Coat' teas work nicely for sore throat. I found that their main helpful ingredient is Slippery Elm
In context ↗ - Magnesium lotion · Helped
magnesium lotion helps me
In context ↗ - Light stretching · Helped
light stretching helps too if you're able
In context ↗ - Epsom salt bath · Helped
also a hot bath with Epsom salts (it is high in magnesium)
In context ↗ - Neilmed sinus rinse · Helped
I swear by my Neil med sinus wash. I use it once every day.
In context ↗ - Gluten-free diet · Helped
I gave up gluten to improve my gut health. Within two weeks I noticed that my joint pain (knees, elbows) had completely disappeared.
In context ↗ - Removing bright LED bulb · Helped
I got rid of the bulb and the vertigo totally disappeared
In context ↗ - Magnesium supplement · Helped
a daily magnesium supplement helps me
In context ↗ - Herbal sleep aids · Helped
I have taken a variety of herbal sleep aids. I switch it up every few months. They are all helpful to me.
In context ↗ - Olive oil in breakfast smoothie · Helped
I add about 2 tablespoons of olive oil to my breakfast smoothie. It makes a huge difference to me and my hunger levels.
In context ↗ - Pea protein · Worse
I switched to it when pea protein left me digestively challenged for a period of time.
In context ↗ - Hemp protein · Helped
Hemp protein was a game changer for me.
In context ↗ - Decreasing carbohydrate intake · Helped
For me the biggest difference to my diet was to decrease my carbohydrate intake.
In context ↗ - Walking a little daily · Not said
I walk a little daily but don't otherwise exercise.
In context ↗ - Fisherman's Friend lozenges · Helped
I have also had relief from Fisherman's Friend lozenges.
In context ↗ - Witch hazel · Helped
Witch hazel is great to use on irritated skin/scalp.
In context ↗ - Silk eye mask · Helped
I use a silk eye mask for sleeping. ... enough for me to get a little more sleep.
In context ↗ - Water walking · Not said
I do water walking once a week. it is basically pacing back and forth in water about chest high.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| 2023-01-09 | joint pain gone after giving up glutenWithin two weeks I noticed that my joint pain (knees, elbows) had completely disappeared.In context ↗ | Mild | Gluten-free diet |
| 2023-01-14 | vertigo after new bright LED bulbI had vertigo suddenly last summer shortly after installing a bright LED bulb in my kitchen overhead light.In context ↗ | Not stated | |
| 2023-01-14 | vertigo resolved after removing bulbI got rid of the bulb and the vertigo totally disappeared.In context ↗ | Not stated | |
| 2026-10-10 | still ill; water walking once a weekI do water walking once a week. it is basically pacing back and forth in water about chest high.In context ↗ | Mild |
Adverse events
- Protein shakes and powder“I switched to it when pea protein left me digestively challenged for a period of time.” In context ↗ Gut side effects
Symptoms mentioned
Flu-like symptomsGut problemsLight & noise sensitivityPOTS & dysautonomiaPain & fibromyalgiaSleep problems
Their words about their symptoms
- Pain & fibromyalgia
Within two weeks I noticed that my joint pain (knees, elbows) had completely disappeared.
In context ↗ - POTS & dysautonomia
I had vertigo suddenly last summer shortly after installing a bright LED bulb in my kitchen overhead light.
In context ↗ - Light & noise sensitivity
people who are light sensitive (me)
In context ↗ - Sleep problems
enough for me to get a little more sleep.
In context ↗ - Flu-like symptoms
Nice to have a cup on the nightstand when waking up with a throat on fire.
In context ↗ - Gut problems
I gave up gluten to improve my gut health.
In context ↗