ME/CFS with exhaustion and crashes, partly better with brain retraining and pacing
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Aug 2024
In their words
- Condition: ME/CFS
as a person with ME/CFS in recovery from an ED
In context ↗ - Now: Somewhat better
I have also partially recovered :)
In context ↗ - Began after: nothing they could name
My many years of a restrictive eating disorder is part of what led to my CFS
In context ↗
Read from 10 of their posts and comments; links to the 10 this page draws on
Summary
A person several years into recovery from an eating disorder they link to their ME/CFS was in 2021 still pushing until exhausted and crashing days later, and took cyclobenzaprine 5-10 mg nightly for sleep and muscle pain. By 2024 they reported being much more functional than in years, crediting brain retraining, trauma therapy, meditation, psych meds and pacing, and called themselves partially recovered.
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What they tried
What they credit
Also tried
Their words about each treatment
- cyclobenzaprine (Flexeril) · Helped
I take a low dose, 5-10 mg, of cyclobenzaprine (flexeril) every night. It’s been a life saver. Helps sleep, relieves some chronic pain and tension
In context ↗ - norethindrone acetate/ethinyl estradiol (Taytulla, generic) · Helped
This med has been life changing for me. I’ve been free of side effects and rarely have pelvic pain anymore.
In context ↗ - pacing and slowly building baseline · Helped
pacing, and slowly building my baseline are all working synergistically
In context ↗ - eating enough food / intuitive eating · Helped
IME, intuitive eating is the best way to get in touch with one’s unique nourishment requirements.
In context ↗ - brain retraining · Helped
I have been making a lot of progress and am feeling more functional than I have in years. Brain-retaining
In context ↗ - trauma work (IFS, EMDR, somatic therapy) · Helped
trauma work (IFS, EMDR, somatic therapy) ... are all working synergistically
In context ↗ - meditation · Helped
meditation, psych meds, pacing, and slowly building my baseline are all working synergistically
In context ↗ - psych meds · Helped
psych meds, pacing, and slowly building my baseline are all working synergistically
In context ↗ - CFS Health baseline theory · Helped
Their approaches make sense and have helped me make so much progress.
In context ↗ - LSD (light dose) · Not said
This light trip did not cause a crash for me.
In context ↗
Approaches: Brain retraining · Mind-body practices · Pacing · Trauma & somatic work
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | ME/CFS onset after years of restrictive eating disorderMy many years of a restrictive eating disorder is part of what led to my CFSIn context ↗ | Not stated |
| 2021 | pushing until too tired, then crashing days laterStill getting caught up in trying to do all of the things while I feel I have the energy, then crashing several days laterIn context ↗ | Mild |
| 2024-06-19 | more functional than in yearsI have been making a lot of progress and am feeling more functional than I have in years.In context ↗ | Mild |
| 2024-07-12 | partial recoveryI have also partially recovered :)In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
Helps me sleep better.
In context ↗ - Pain & fibromyalgia
Decreases some of my chronic muscle/fascism tension and pain related to myofascial pain syndrome
In context ↗ - Headaches & migraine
Helped break a multiple month migraine cycle
In context ↗ - Post-exertional malaise
Still getting caught up in trying to do all of the things while I feel I have the energy, then crashing several days later
In context ↗
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