Long COVID with MCAS and gut issues, somewhat better with antihistamines and diet
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 4.5 years
- Last post
- Jan 2026
In their words
- Condition: Long COVID
Symptoms identical to “long covid”.
In context ↗ - Now: Somewhat better
Mastic gum and AMOXICILLIN gave me improvement. ... the aftermath is Lupus and some weird flavor of M.C.A.S.
- Began after: a vaccination
Happened to me after one dose of the vaccine.
Read from 25 of their posts and comments; links to the 17 this page draws on
Summary
They fell ill in August 2021 after one dose of Pfizer, with long-COVID-like symptoms including MCAS, food allergies, adrenaline surges, hypnic jerks and gut problems, and later reported lupus and were diagnosed with celiac disease. Wim Hof breathing, antihistamines, a low-histamine diet, mastic gum and a 10-day course of amoxicillin helped at times, but the antibiotic benefit was short-lived and they were still working back to baseline.
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What they tried
What they credit
Also tried
Their words about each treatment
- Wim Hoff method · Helped
The Wim Hoff method has also helped me tremendously.
In context ↗ - Monolaurin · Helped
Monolaurin helps.
In context ↗ - Allegra or Zyrtec · Helped
Antihistamines help so much.
In context ↗ - low histamine diet · Helped
combined with a low histamine diet and lots of wim hoff breathing exercises helped me
In context ↗ - Singulair · Helped a lot
At my worst Singulair helped a ton, but be warned it comes with a black box warning.
In context ↗ - Gad · Worse
I had a bad reaction to Gad too. I actually feel like I’d be further along in my recovery if it wasn’t for that. Never again.
In context ↗ - amoxicillin · Helped
I took 800mg amoxicillin for 10 days and I felt so good during and after.
In context ↗ - ketotifen · Worse
I was prescribed it but for some reason I had weird side effects.
In context ↗ - otc digestive enzymes · Worse
I reacted to otc digestive enzymes.
In context ↗ - prayer · Helped
Also, prayer helps me.
In context ↗ - probiotics · Helped
I experimented with so many, you will have to do the same but it’s absolutely necessary.
In context ↗ - prednisone · Helped
Prednisone helps with autoimmune flares.
In context ↗ - mastic gum · Helped
Mastic gum and AMOXICILLIN gave me improvement.
In context ↗ - elimination diet · Helped
Once I stopped eating corn, I started gaining weight.
In context ↗ - COVID vaccination as treatment · Not said
I had a massive allergic reaction to it and then everything else followed.
In context ↗
Approaches: H1 antihistamines · Antibiotics · Antihistamines & MCAS · Mind-body practices · Supplements
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| August 2021 | massive allergic reaction to first Pfizer dose, then long-COVID-like illnessI had a massive allergic reaction to it and then everything else followed.In context ↗ | |
| — | waking with terrible adrenaline dumps; low point before SingulairI would wake up with terrible adrenaline dumps ... At my worst Singulair helped a ton | |
| 2022-02 | Wim Hof breathing and meditation helpedThe Wim Hoff method has also helped me tremendously.In context ↗ | Meditation, yoga, breathwork |
| 2024-03 | bad reaction to 'Gad', which she says slowed her recoveryI had a bad reaction to Gad too. I actually feel like I’d be further along in my recovery if it wasn’t for that.In context ↗ | |
| 2024-06 | felt good during and after a 10-day course of amoxicillinI took 800mg amoxicillin for 10 days and I felt so good during and after.In context ↗ | Amoxicillin (Amoxil) |
| 2024-09 | antibiotic benefit was short lived; still getting back to baselineI had to take a round of abx earlier this year and while I felt better initially it was short lived. Still getting back to my “baseline”.In context ↗ | |
| 2026-01 | aftermath described as lupus, MCAS, celiac disease and food allergiesit seems like for me the aftermath is Lupus and some weird flavor of M.C.A.S.In context ↗ |
Adverse events
- COVID vaccination as treatment“I had a massive allergic reaction to it and then everything else followed.” In context ↗ Allergic reaction / anaphylaxis
- COVID vaccination as treatment“I have reactivated E.B.V. from the vaccine and my spleen and liver are both swollen because of it.” In context ↗ Liver or kidney problems
- COVID vaccination as treatment“it seems like for me the aftermath is Lupus and some weird flavor of M.C.A.S. I am also now diagnosed with Celiac disease, and a bunch of allergies to foods.” In context ↗ Autoimmune or inflammatory flare
- “I had a bad reaction to Gad too. I actually feel like I’d be further along in my recovery if it wasn’t for that. Never again.” In context ↗ Side effects
- Ketotifen (Zaditen)“I was prescribed it but for some reason I had weird side effects.” In context ↗ Side effects
- “I reacted to otc digestive enzymes.” In context ↗ Side effects
- Amoxicillin (Amoxil)“I had to take a round of abx earlier this year and while I felt better initially it was short lived. Still getting back to my “baseline”.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
I am a vax long haulers with MCAS issues, amongst other things.
In context ↗ - Sleep problems
When this happens to me, I use the Wim Hoff technique and it helps me fall asleep.
In context ↗ - Anxiety & low mood
I would wake up with terrible adrenaline dumps
In context ↗ - Gut problems
Once I stopped eating corn, I started gaining weight.
In context ↗
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