Long COVID: sofa-bound at worst, still crashing after 20 minutes of sport
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 19 months
- Last post
- Oct 2023
In their words
- Condition: Long COVID
got long covid since march 22
In context ↗ - At worst: Moderate
Going upstairs feels like it’s a fucking mountain hike. Sometimes I can’t move in my sofa.
In context ↗ - Now: No benefit
I still have fatigue since march 22.
In context ↗ - Began after: COVID
got long covid since march 22
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
A Reddit user who has had long COVID since March 2022. At their worst, seven months in, they could not do any sport, sometimes could not move off the sofa and found stairs like a mountain hike. They tried weed, fasting, supplements and antihistamines (brief benefit, lost on stopping), and credit cold-water baths with helping a bit. By October 2023 they could do 20 minutes of sport every few days, but crashed afterwards.
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What they tried
Also tried
Their words about each treatment
- weed · Not said
I’ve tried some weed, time passes by.
In context ↗ - fasting · Not said
I’ve tried fasting, complement and a shit ton of things. There’s no miracle.
In context ↗ - antihistamine · Helped
Last week I had 3 tabs, one tab every 2 days and I felt better. Since today (day 3 without antihistamines) and I feel bad again
In context ↗ - bath in cold water · Helped
Treatment by cold helped me a bit, if you are near some lake or ocean. Go there for 1 min degree Celsius. Every day.
In context ↗ - h4cbd · Not said
After using weed during day, I use h4cbd, hydrogened version of cbd.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 7 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2022 | caught COVID, long COVID sincegot long covid since march 22In context ↗ | Not stated | |
| 2022-10-27 | could no longer do any sport, sometimes could not move off the sofaGoing upstairs feels like it’s a fucking mountain hike. Sometimes I can’t move in my sofa.In context ↗ | Moderate | |
| 2023-03-09 | antihistamines helped, felt bad again three days after stoppingLast week I had 3 tabs, one tab every 2 days and I felt better.In context ↗ | Moderate | H1 antihistamines (unspecified) |
| 2023-10-16 | cold water helped a bit; can do 20 minutes of sport every 3-4 days before crashing; caught COVID againTreatment by cold helped me a bit ... I can have 20 min of sports every 3-4 days, when u say sport, it’s doing skate before crashing.In context ↗ | Mild | Cryotherapy and cold exposure |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Pushing the limit is a really bad idea.
In context ↗ - Brain fog
I got brainfog, sometimes I don’t remember my close friends name.
In context ↗ - Sleep problems
Fatigue, brain fog, short breath and insomnia.
In context ↗ - Loss of smell or taste
I’ve lost some smell
In context ↗