Long COVID with stroke-like symptoms, much better after sleep and taking it easy
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 16 months
- Last post
- Apr 2024
In their words
- Condition: Long COVID
I finally see a neurologist who immediately diagnoses me with long Covid
In context ↗ - At worst: Mild
Fast forward two weeks still trying to work regularly not improving
In context ↗ - Now: Much better
I’m a year and 4 months in, and I’m the best I’ve felt since I got this.
In context ↗ - Began after: COVID
I (m29) was infected in November of 2022 and showed my first symptoms (purely neurological) in January.
In context ↗ - Says they never had: Light & noise sensitivity
I have no sensitivity to light, or sound
Read from 19 of their posts and comments; links to the 12 this page draws on
Summary
A 29-year-old man developed purely neurological long COVID in January 2023 after a November 2022 infection, with stroke-like symptoms, one-sided head pressure, insomnia, anxiety and brain fog. Sleep and taking it easy helped most, and by months five to seven he felt about 90% recovered; around month seven he said 80% of original symptoms were gone. A family bereavement, panic attacks and job loss set him back. By month 16 he felt the best since onset.
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What they tried
What they credit
Also tried
Their words about each treatment
- gabapentin · Helped
I was prescribed gabepentin, by my neurologist, for nerve pain, at the beginning it helped me sleep very good gave very lucid/vivid dreams. Stopped and started again after about three months because I wasn’t able to sleep or stay asleep, and it helped but made me feel like shit when I woke up.
In context ↗ - sumatriptan · Much worse
I just got a shot of sumatriptan, at the er and it might’ve been the worst drug I think I’ve ever taken, 50mg injection, made me feel like I was physically vibrating in the back of my head and jaw, extreme lightheadedness
In context ↗ - toroidal injection · Helped
toroidal injection for inflammation gives great relief for about three days
In context ↗ - lorazapam · Helped
lorazapam I can honestly say are the only two things that have ever been significant in reducing symptoms
In context ↗ - rest and taking it easy · Helped
Sleep and taking it easy we’re the main benefactors to helping me.
In context ↗ - salt · Not said
I stopped doing salt for awhile, but that didnt really help too much.
In context ↗ - warm/hot compress · Helped
my wife made a warm/hot compress for me and it almost instantly started alleviating some of the tension pressure
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| January 2023 | Purely neurological symptoms began, mimicking a stroke; kept trying to workI (m29) was infected in November of 2022 and showed my first symptoms (purely neurological) in January.In context ↗ | Mild | |
| month 5-7 (mid 2023) | Good stretch, felt about 90% recoveredHad a good period were I was fully confident I was beating this from about month 3 to about month 5/6In context ↗ | Near normal | Pacing and the energy envelope |
| July 2023 | Panic and anxiety attacks after family trauma and bereavement set him backI thought I was about 90% recovered on month 5-7 then had a fit of panic/anxiety attacks that have set me backIn context ↗ | Mild | |
| 2023-08-25 | Around 80% of original symptoms gone, head pressure remainingIt does get better, I’d say around 80% of my original symptoms are gone.In context ↗ | Mild | |
| 2024-04-03 | Best he had felt since onsetI’m a year and 4 months in, and I’m the best I’ve felt since I got this.In context ↗ | Mild |
Adverse events
- Gabapentin (Neurontin)“it helped but made me feel like shit when I woke up.” In context ↗ Side effects
- Sumatriptan (Imitrex)“made me feel like I was physically vibrating in the back of my head and jaw ... mild chest tightness” In context ↗ Side effects
- Sumatriptan (Imitrex)“extreme lightheadedness” In context ↗ Low blood pressure or fainting
- Sumatriptan (Imitrex)“constant abdominal problems making bathroom visits regular” In context ↗ Gut side effects
- Sumatriptan (Imitrex)“I’ve had toroidal and imitrex shots which I had a horrible reaction to the imitrex” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
a constant pressure on the right side of my head near about my temple/above my ear
In context ↗ - Sleep problems
problems falling asleep, problems staying asleep
In context ↗ - Anxiety & low mood
Extreme anxiety
In context ↗ - Brain fog
when my brain fog is severe is pretty consistent zoning out
In context ↗ - Neuropathy & tingling
I was prescribed gabepentin, by my neurologist, for nerve pain
In context ↗ - POTS & dysautonomia
a sensation like falling/passing out but did not pass out
In context ↗
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