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Long COVID Moderate → no benefitIll for 4 months

Long COVID with constant dizziness, headaches and task-triggered exhaustion, no improvement

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
4 months
Last post
Aug 2022
In their words
  • Condition: Long COVIDr/covidlonghaulers In context ↗
  • At worst: ModerateI’m WFH at the moment but that’s even a struggle In context ↗
  • Now: No benefitThe vertigo attacks have been getting more frequent and more intense In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

At 27 they were admitted to A&E with a six-minute loss of consciousness and bradycardia four months before writing. Since then they had constant lightheadedness and episodic vertigo, cluster headaches, numbness and pain, visual disturbance and exhaustion after the smallest task. They were working from home with difficulty and could manage only five minutes of shopping. Sleeping and over-hydration seemed to help.

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What they tried

Also tried

Sleeping· HelpedOver hydration· HelpedTravel sickness tablets· No change
Their words about each treatment
  • Sleeping · HelpedSleeping and over hydration seems to help me. In context ↗
  • Travel sickness tablets · No changeI’ve been self medicating with travel sickness tablets but they don’t seem to do much. In context ↗

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
4 months before August 2022Acute loss of consciousness with bradycardia and hypotension, admitted to A&E and resuswas admitted to A&E 4 months ago after acute loss of consciousness (6 mins) and bradycardia and hypotension that warranted a stint in resus In context ↗
2022-08-20Symptoms persist; working from home with difficulty and going out only brieflyI’m WFH at the moment but that’s even a struggle and I’m pretty sure I’m going to have to go back to the office very soon. In context ↗

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaConstant lightheadedness like head rushes, kinda like being drunk. Much much worse on movement. In context ↗
  • Headaches & migraineCluster headache (diagnosed) which sends me to bed In context ↗
  • Neuropathy & tinglingConstant vibrations/numbness/pain in my arms, legs and torso almost like they’re being crushed In context ↗
  • Post-exertional malaiseExhaustion after the smallest task - hanging my clothes in my closet makes me feel like I’ve ran a marathon In context ↗
  • Brain fogTrouble finding the right word and using nonsense words In context ↗
  • Vision problemsVisual blurriness and floaters and sometimes double vision In context ↗
  • Mast cell (MCAS) & allergiesFacial flushing and excessive sweating when I’m just sitting down. In context ↗
  • Light & noise sensitivityI just can’t cope with the lightness of the room or the noise In context ↗
  • Heart symptoms & palpitationsbradycardia and hypotension that warranted a stint in resus In context ↗

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Asking aboutPebble 56255’s story

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