Long COVID fatigue after 1.5 hours, now somewhat better with ADHD medication and B12
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 18 months
- Last post
- Aug 2022
In their words
- Condition: Long COVID
I've been a long hauler since Aug '20
In context ↗ - At worst: Mild
I have a full time job that isn't horribly input heavy, but I have to be in office. ... Weekends are spent sleeping/resting and responsibility handling.
In context ↗ - Now: Somewhat better
it got better after a year and a half, but I still get episodes of blurriness
In context ↗ - Began after: COVID
I've been a long hauler since Aug '20
In context ↗
Read from 10 of their posts and comments; links to the 9 this page draws on
Summary
Badger 53912 became a long hauler in August 2020. Nearly two years later they were still working full time in an office, with energy running out after about 1.5 hours of activity in the evening, and weekends spent resting. Vision problems improved after around 18 months, though blurry episodes continued. ADHD medication helped the fatigue, B12 helped, gabapentin was added for fibromyalgia-like symptoms and omeprazole slowed palpitations.
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What they tried
What they credit
Also tried
Their words about each treatment
- ADHD meds · Helped
ADHD meds helped get through the fatigue sometimes.
In context ↗ - b12 · Helped
Yeah b12 helped but I'm on gabapentin now and it's not enough
In context ↗ - Gabapentin · Helped
Gabapentin. I personally wouldn't have steriods, so she went with gaba. started on 300mg/day, then went up to 600mg, but now it's looking like i need 1200.
In context ↗ - moisturizing · Helped
Honestly just moisturizing helped
In context ↗ - weed · Helped
Weed has helped a lot with all of this (minus temp reg), but the physical dependence is not ideal.
In context ↗ - prilosec · Helped
I found that prilosec is helping a lot to slow the palp
In context ↗
Approaches: Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 18 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| Aug '20 | long COVID onsetI've been a long hauler since Aug '20In context ↗ | Not stated |
| 2022-02-22 | concentration trouble and vision problems eased but blurry episodes continueI feel the same way, and it got better after a year and a half, but I still get episodes of blurrinessIn context ↗ | Mild |
| 2022-04-08 | working full time in office, energy runs out after about 1.5 hours in the evening, weekends restingI have a full time job that isn't horribly input heavy, but I have to be in office.In context ↗ | Mild |
| 2022-08-18 | heart palpitations slowedI found that prilosec is helping a lot to slow the palpIn context ↗ | Mild |
Adverse events
- Cannabis (THC, marijuana)“Weed has helped a lot with all of this (minus temp reg), but the physical dependence is not ideal.” In context ↗ Other
Symptoms mentioned
Their words about their symptoms
- Brain fog
I feel the same way, and it got better after a year and a half
In context ↗ - Vision problems
I still get episodes of blurriness
In context ↗ - Sleep problems
Insomnia hasn't been too bad for me, although yesterday I couldnt sleep.
In context ↗ - Pain & fibromyalgia
come home, smoke the aches off
In context ↗ - Heart symptoms & palpitations
prilosec is helping a lot to slow the palp
In context ↗ - Temperature regulation
Weed has helped a lot with all of this (minus temp reg)
In context ↗
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