ME/CFS with brain fog, pain and crashes, somewhat better after saline IVs
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Sep 2026
In their words
- Condition: ME/CFS
I like that the features are built for what I have, and the way they built this app has also educated me about my condition.
In context ↗ - At worst: Moderate
I've hired in-home carer once a week for basic cleaning, errands, etc
In context ↗ - Now: Somewhat better
The first time my muscle pain and weakness improved, the second time my dysautonomia improved.
In context ↗
Read from 14 of their posts and comments; links to the 10 this page draws on
Summary
ME/CFS left this person with brain fog, muscle pain and weakness, dysautonomia, tinnitus and crashes; their capacity had dipped the previous year. They paced with the Visible app and armband, wore Loop earplugs, used a shower stool and paid a weekly in-home carer. Two 500 ml saline IVs from a naturopath eased muscle pain and weakness first, then dysautonomia.
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What they tried
What they credit
Also tried
Their words about each treatment
- Loop Switch earplugs · Helped
I love my Loop switch earplugs, not fully canceling, they turn down the volume
In context ↗ - Loop Quiet earplugs · Helped
Loop Quiet earplugs work well for me - softer fit that dont hurt my ear
In context ↗ - Stool for bathroom sink and shower · Not said
I got a stool for my shower, its so nice to just sit under the water sometimes
In context ↗ - Sonicare toothbrush · Helped
my new $300 Sonicare from Costco has way less vibration helping me to brush more often
In context ↗ - Biotene · Helped
I also use biotene because my mouth seems dry ... I find it feels really soothing
- Bateman Horne Center support meetings · Helped
Not a product per se, but for free you can attend the Bateman Horne Center meetings. These have helped me so much!
In context ↗ - Visible app and monitor band · Helped
Gained a lot by upgrading. Lots to help me, daily pacing, showing to doctors
In context ↗ - saline IV infusion · Helped
The first time my muscle pain and weakness improved, the second time my dysautonomia improved.
In context ↗ - In-home carer · Not said
she gets so much done in 3.5 hours, sometimes takes me to a local park to get me out of the house
In context ↗ - Noise-cancelling headphones · Worse
Noise canceling makes my tinnitus way worse.
In context ↗
Approaches: Pacing
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 2025 (last year) | capacity dippedwhen my capacity dipped like yours last yearIn context ↗ | Not stated |
| 2026-08-14 | first saline IV eased muscle pain and weaknessThe first time my muscle pain and weakness improvedIn context ↗ | Not stated |
| 2026-09-14 | saline IVs helping, third one plannedIt has helped me since I discovered it recently, but its harder to get outside hospital settingsIn context ↗ | Moderate |
Adverse events
- Noise-cancelling headphones“Noise canceling makes my tinnitus way worse.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
With my brain fog, I could never have pieced this together for myself using standard wellness apps
In context ↗ - Tinnitus
Noise canceling makes my tinnitus way worse
In context ↗ - Pain & fibromyalgia
my muscle pain and weakness improved
In context ↗ - POTS & dysautonomia
the second time my dysautonomia improved
In context ↗ - Post-exertional malaise
Crashing is so isolating!
In context ↗
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