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ME/CFS Somewhat betterNeeds ongoing treatment

CFS with widespread pain and relapses, somewhat better with diet changes and amitriptyline

Condition
ME/CFS
At worst
Not stated
Ill before improving or writing
Not stated
Last post
May 2018
In their words
  • Condition: ME/CFSAlong with CFS, I also have Fibromyalgia In context ↗
  • Now: Somewhat betterI definitely notice a lessening in my symptoms for a long time. I still get flair ups but they don’t last as long now. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A person with CFS and fibromyalgia said in 2018 that fasting and eating on a fixed schedule did not work for them, but eating healthily and avoiding white carbs eased sugar crashes and lengthened the time between full relapses. Amitriptyline, started at one tablet nightly and raised to two when needed, gave refreshing sleep and eased widespread pain. Flare-ups still came but no longer lasted as long.

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Asking aboutSandpiper 86297’s story

What they tried

Their words about each treatment
  • fasting · No changeI’ve never found fasting or religiously eating to a time schedule works for me. In context ↗
  • eating healthy and staying away from white carbs · HelpedBut eating healthy and staying away from white carbs does help. In context ↗
  • Amatryptaline · Helpedit helps me with refreshing sleep and has helped ease the pain In context ↗

Approaches: Diet

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
—ill with CFS and fibromyalgiaAlong with CFS, I also have Fibromyalgia which is wide spread pain throughout the body. In context ↗
2018-05-09eating healthy and avoiding white carbs helpedBut eating healthy and staying away from white carbs does help. In context ↗
2018-05-11amitriptyline gives refreshing sleep and eases pain; flare-ups shorterI definitely notice a lessening in my symptoms for a long time. I still get flair ups but they don’t last as long now. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsI found I was getting a lot of unrefreshing sleep which then made the pain worse. In context ↗
  • Pain & fibromyalgiaI also have Fibromyalgia which is wide spread pain throughout the body In context ↗

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