Long COVID with deep crashes, now much better after Primal Trust and JournalSpeak
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 2 years
- Last post
- May 2024
In their words
- Condition: Long COVID
I am in this since may 2022 and still have way more symptoms than only fatigue.
In context ↗ - Now: Much better
I'm about 80% functional right now again. ... I never get PEM or a crash anymore, only flare ups of symptoms
In context ↗ - Began after: stress or burnout
I'm recovering from a pretty severe burnout for the past 15 months
Read from 15 of their posts and comments; links to the 12 this page draws on
Summary
A person ill since May 2022 with long COVID reported far more than fatigue, frequent very deep crashes, and a flu in late 2023 that left them much worse. From late 2023 into 2024 they credited the Primal Trust program, JournalSpeak and deep emotional and trauma work; by May 2024 they reported about 80% function, no more PEM or crashes but still symptom flare-ups, and called themselves waaay recovered.
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What they tried
What they credit
Also tried
Their words about each treatment
- Lexapro · Helped
I gained 90lbs in 1 year on Lexapro, fck SSRIs. ... I know Lexapro helped me last year, it just takes away the anxiety
- Primal Trust program · Helped
I've been in the Primal Trust program (for CFS/ME) ... I'm recovering from a pretty severe burnout for the past 15 months and progress is very slow but steady
In context ↗ - relaxation before bed · Helped
I quit video games before bed and did relaxation before bed and now I usually sleep ~7h before waking up to pee.
In context ↗ - journalspeak · Helped
I also started journalspeak 2 weeks ago and it helps man.
In context ↗ - deep emotional and trauma work · Helped a lot
I'm doing very deep emotional and trauma work, it in turn turns off the fight or flight (disautonomia) and all my other problems disappeared with it.
In context ↗ - therapy · Helped
I'm solving them now through therapy, inner child healing, different healing programs and I see more progress in 4 months
In context ↗ - Zoloft · Helped
This is where the Zoloft helped me get over that hurdle too.
In context ↗
Approaches: CBT & mindset · SSRIs · Brain retraining · Trauma & somatic work
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 18 months after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| May 2022 | Illness onsetI am in this since may 2022In context ↗ | Not stated | |
| — | frequent very deep crashesI crashed very often and very deepIn context ↗ | Moderate | |
| October 2023 | crashed after a fluI also got a flu 2 weeks ago and got way worseIn context ↗ | Moderate | |
| 2023-11-04 | setback after fast-paced video games (CSGO, Starcraft)Yes I have a setback from this too, I played CSGO and Starcraft and it's too fast pace.In context ↗ | Moderate | |
| 2023-11-10 | slow but steady recovery while doing the Primal Trust programI'm recovering from a pretty severe burnout for the past 15 months and progress is very slow but steadyIn context ↗ | Moderate | Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust) |
| 2024-01-19 | JournalSpeak started and helpingI also started journalspeak 2 weeks ago and it helps man.In context ↗ | Moderate | Sarno / TMS / somatic tracking / JournalSpeak |
| 2024-05-07 | a setback expected to last weeks cleared in a day after an emotional releaseI had a setback in recovery that 'should' last more than 3 weeks and after an emotional release I was fine within a day.In context ↗ | Mild | Sarno / TMS / somatic tracking / JournalSpeak |
| 2024-05-23 | about 80% functional, no more PEM or crashesI'm about 80% functional right now again ... I never get PEM or a crash anymore, only flare ups of symptomsIn context ↗ | Mild | Sarno / TMS / somatic tracking / JournalSpeak |
| 2024-05-28 | described self as waaay recoveredsince I'm already waaay recoveredIn context ↗ | Mild |
Adverse events
- Escitalopram (Lexapro)“I gained 90lbs in 1 year on Lexapro, fck SSRIs.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I never get PEM or a crash anymore
In context ↗ - Sleep problems
A month ago I also peed 4x a night and had stressdreams
In context ↗ - Anxiety & low mood
My anxiety and other symptoms were simply gone really fast
In context ↗ - POTS & dysautonomia
it in turn turns off the fight or flight (disautonomia)
In context ↗
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