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Condition not stated Moderate → no benefitIll for 1 year

Off work nearly a year with bleeding and fatigue, no improvement from iron infusions

Condition
Condition not stated
At worst
Moderate (mostly housebound)
Ill for
1 year
Last post
Apr 2026
In their words
  • Condition: Condition not statedDon’t have a diagnosis of CFS but I’m wondering if it’s what I have. In context ↗
  • At worst: ModerateDrying off from the shower makes me winded. Walking my kid to school (on our block) wipes me out. In context ↗
  • Now: No benefitI was hoping recovery from anemia would help, but it hasn’t. In context ↗
  • Began after: nothing they could nameThis all started around the time my period changed.
  • Says they never had: Anxiety & low moodDoc says he thinks it’s depression but I don’t feel depressed.
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Birch 87686, 42, has been off work for nearly a year; continuous heavy bleeding began in April 2025, when fatigue, word-finding trouble and breathlessness set in. Iron infusions raised her iron level but she remained exhausted; continuous progesterone from August made the bleeding more manageable. She had no CFS diagnosis and was awaiting an MRI for adenomyosis.

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What they tried

Their words about each treatment
  • multiple infusions · No changeMy iron was 12 in Jan but after multiple infusions it’s now 112 but I’m still exhausted. In context ↗
  • continuous progesterone · HelpedMy doctor put me in continuous progesterone at the end of August. From late October I’ve still been bleeding but it’s more manageable. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo9 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
April 2025normal period changed, continuous heavy bleeding began; exhaustion, missing words and breathlessness followedApril 2025 my normal period started and there has not been a day since that I have not been bleeding. In context ↗Moderate
Novattempted return to work failedTried an unsuccessful return in Nov. In context ↗Moderate
2026-04-07still exhausted and off work despite iron infusions and continuous progesteroneMy iron was 12 in Jan but after multiple infusions it’s now 112 but I’m still exhausted. In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Brain fogI’m missing words, can’t concentrate, and get overwhelmed easily. In context ↗
  • BreathlessnessDrying off from the shower makes me winded. In context ↗
  • Sleep problemsSleeping doesn’t help. In context ↗

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