ME/CFS
Outcome unclearIll for 10 years
ME/CFS with air hunger; montelukast and pacing help manage symptoms
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 10 years
- Last post
- Jun 2026
In their words
- Condition: ME/CFS
as the one with ME
In context ↗ - Began after: another virus
Yep, I believe mine was a combo of catching a cold a week after I opened my restaurant and was under so. much. stress.
Summary
Fell ill in about 2016 after a cold came a week after opening a restaurant under extreme stress, and says they never fully recovered. Air hunger was a symptom; montelukast made breathing feel more productive and improved energy and mood, and pacing, rest and not worrying helped. Years on they manage symptoms fairly well, but stress still exacerbates them and they often cannot sleep beside a partner.
Ask Miruvor AI
What they tried
Their words about each treatment
- Montelukast · Helped
For air hunger I found an allergy pill, Montelukast, helped a surprising amount! It made each breath feel much more productive and boosted my energy and mood by a noticeable difference.
In context ↗ - deep breathing techniques · Helped
when just laying there practicing deep breathing techniques, and exhaling as much as possible seemed to open up my lungs to receive more during inhalations
In context ↗ - pacing and resting · Helped
But mostly pacing and resting and not worrying are key.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| 2016 | cold a week after opening a restaurant under extreme stress; never recoveredYep, I believe mine was a combo of catching a cold a week after I opened my restaurant and was under so. much. stress. I never recovered.In context ↗ | Not stated | |
| 2022-08-11 | small measures added up and eventually helpedFinding these little things and adding them up did eventually help me.In context ↗ | Mild | Montelukast / Singulair |
| 2023-09-01 | learned to manage symptoms fairly well, but stress still worsens themI've learned to manage my symptoms fairly well, but getting stressed definitely exacerbates things.In context ↗ | Mild | |
| 2026-06-07 | still limited; often cannot sleep with a partner next to themlots of times even then I can't sleep with someone next to meIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Breathlessness
For air hunger I found an allergy pill, Montelukast, helped a surprising amount!
In context ↗ - Sleep problems
lots of times even then I can't sleep with someone next to me
In context ↗