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Long COVID Severe → much betterIll 11 months before improving or writing

Long COVID with severe joint pain, much better on low-dose naltrexone

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
11 months
Last post
Apr 2022
In their words
  • At worst: SevereI was unable to hold a book upon because of how bad the pain was in my fingers ... walk around at the zoo without a wheelchair!
  • Now: Much betterin my 11th month, I am finally seeing progress. I am able to read, paint, and even walk around at the zoo without a wheelchair! In context ↗
  • Began after: COVIDF\*\*\* long covid!
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A college athlete diagnosed with long COVID was still ill 11 months later; they had severe joint pain for months and at one point could not hold a book. Low-dose naltrexone cleared the joint pain within two weeks, and by their 11th month they could read, paint and walk around the zoo without a wheelchair. Exercising when they felt slightly better only set them back, but they said recovery was possible.

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What they tried

Their words about each treatment
  • running · WorseI would run as soon as I felt slightly better or when I was feed up with being sick and it only makes things worse In context ↗
  • low-dose naltrexone · Helped a lotI was prescribed low-dose naltrexone and within two weeks my joint pain was completely gone. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo9 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
onsetdiagnosed with long COVID as a college athleteI was an NCAA athlete about to start my senior season when I got diagnosed In context ↗Near normal
10 months inhit their wall; needed a wheelchair for outings and could not hold a bookWhen I was 10 months in, I hit my wall too and felt it was never going to end In context ↗Severe
11th month (April 2022)able to read, paint and walk around the zoo without a wheelchairI am able to read, paint, and even walk around at the zoo without a wheelchair! In context ↗MildLow-dose naltrexone

Symptoms mentioned

Their words about their symptoms

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