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Long COVID Severe → somewhat betterIll 4 years before improving or writingNeeds ongoing treatment

In bed with long COVID pain and brain fog, now somewhat better with daily cannabis

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
4 years
Last post
Apr 2026
In their words
  • Condition: Long COVIDI have had long covid for four years. In context ↗
  • At worst: SevereI went from having suicidal thoughts from the pain, to being able to get up out of bed and play with my nephew for a couple hours a day In context ↗
  • Now: Somewhat betterNow I’m slowly starting to recover again. It’s a very slow climb, but it is a climb. In context ↗
  • Began after: COVIDI have had long covid for four years. In context ↗
Read from 8 of their posts and comments; links to the 6 this page draws on

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Summary

They developed long COVID in late 2020 and were soon in bed with pain at 8-9 out of 10, suicidal thoughts from the pain, brain fog, nausea and trouble sleeping. Daily cannabis from about three months in cut the pain to 3-4 and got them out of bed, and their doctor backed continued use. A three-week flare-up and repeat COVID infections set them back more than once; by April 2026 they said they were getting better.

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What they tried

Also tried

Their words about each treatment
  • Cannabis · HelpedI started using it daily around 3 months into long covid, and have not stopped using it since, and I’m 9 months in. My doctor seems surprised with how much it helps, it takes my pain from 8 to 3 or 4. In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered12 mo2 y3 y4 y5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. 1 step has no time and sits in story order between the steps around it. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
onsetlong COVID beganI have had long covid for four years. In context ↗Not stated
around 3 months into long covidin bed with pain 8-9 and suicidal thoughts from the painI went from having suicidal thoughts from the pain, to being able to get up out of bed and play with my nephew for a couple hours a day In context ↗Severe
September 2021daily cannabis cut pain and got them out of bedit takes my pain from 8 to 3 or 4 In context ↗Moderate
October 2021three-week flare-up of painI kinda ignored my rule during my 3 week flare up I just had, due to the pain, and now I’m dealing with the consequences. In context ↗Moderate
December 2021second COVID infection with almost every symptomAfter the second, I had almost every possible symptom, it was horrible. In context ↗Moderate
December 2021appetite, nausea and brain fog much better two days after the infection wore offBut 2 days after it wore off, my appetite, nausea, and brain fog got so much better. In context ↗Moderate
before May 2025repeated COVID reinfections after starting to recoverI started recovering, then got covid again. Started recovering again, got covid again-again. In context ↗Moderate
April 2026slowly getting betterOpposite for me, I’ve been getting better In context ↗Moderate

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiamy pain is a 8~9 and existence is hell In context ↗
  • Brain fogI have too much brain fog to look any of this stuff up In context ↗
  • Gut problemsWithout it I have no appetite, and throw up if I eat too fast or something too heavy. In context ↗
  • Sleep problemsIts the only way I can fall asleep before 5 am. In context ↗
  • Anxiety & low moodI went from having suicidal thoughts from the pain In context ↗

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