Unable to work with ME/CFS, now much better with pacing and working from home
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 10 years
- Last post
- Aug 2021
In their words
- Condition: ME/CFS
I've had CFS for a decade now
In context ↗ - At worst: Moderate
when I was first diagnosed a decade ago I was unable to work
In context ↗ - Now: Much better
I managed to recover enough to work part-time and then later full-time
In context ↗
Read from 8 of their posts and comments; links to the 6 this page draws on
Summary
The poster was unable to work when diagnosed with CFS about a decade earlier, then recovered enough to work part-time and later full-time in a new career. They mentioned pacing and learning their limits, swimming and yoga, psychotherapy and working from home as helpful, with working from home giving more energy and less muscle pain. By mid-2021 they worked full-time, studied part-time and still tired easily after work.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- psychotherapy · Helped
I found talking to a therapist really helpful as well.
In context ↗ - pacing / learning my limits · Helped a lot
the result of learning my limits and not pushing them
In context ↗ - nourishing diet, low sugar · Helped
I also try to not have too much sugar as it just causes crashes and makes me feel slumpy.
In context ↗ - yoga · Helped
I found exercise that works for me, I do swimming and yoga but I don't push myself
In context ↗ - swimming · Helped
I do swimming and yoga but I don't push myself, I stick with what's comfortable.
In context ↗ - COVID vaccination as treatment · Not said
I had my second dose of Pfizer the week before last. I got pretty bad side effects with my first dose but only a sore arm with the second.
In context ↗
Approaches: CBT & mindset · Exercise and activity · Mind-body practices · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| about 2011 | diagnosed with CFS; unable to work; rated themselves 7/8 on their own scalewhen I was first diagnosed a decade ago I was unable to work ... A decade ago I was 7/8. | Moderate | |
| — | recovered enough to work part-time, later full-time; changed careersI managed to recover enough to work part-time and then later full-timeIn context ↗ | Mild | Pacing and the energy envelope |
| before the pandemic | office work with an hour's commute each way; collapsed after work, almost constant muscle painBefore the pandemic when I had to work in the office every day and spent an hour commuting each way I'd get home and just collapse.In context ↗ | Mild | |
| 2020 | switched to working from homeWorking from home is so much better, I have more energy because if I need to I can take a break and lie down.In context ↗ | Mild | |
| 2021-06-14 | working full-time from home and studying part-time; still tired and limited sociallyI'm a 3 most days, 2 on a good day ... Some days after work I still do just lie down because I'm exhausted | Mild |
Adverse events
- COVID vaccination as treatment“I had my second dose of Pfizer the week before last. I got pretty bad side effects with my first dose but only a sore arm with the second.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
so I can stop before it becomes a crash
In context ↗ - Pain & fibromyalgia
I'm also in much less pain
In context ↗ - Brain fog
I find it difficult to read for extended periods of time.
In context ↗
Ask Miruvor AI
Similar stories
-
Long COVID unable to work, now 90% after detox and hyperbaric oxygen
Coast 43089 caught COVID in early 2020 and was left unable to work, with brain fog, tinnitus, breathlessness and sensory sensitivity. She credits a long detox programme — multi-month parasite cleanse, hyperbaric oxygen therapy, methylene blue with red light,…
-
Housebound with long COVID, now much better and back at work after rest and acupuncture
An Australian academic in their forties got long COVID in May 2024 after a third infection: brain fog first, then crippling fatigue that left them housebound and crashing daily for months. Rest, time and treatments including acupuncture greatly improved…
-
Bedridden or housebound with long COVID, now much better with pacing and LDN
Ill from February 2020, they were often bedridden or housebound with severe pain, headaches, diarrhoea and suicidal depression. They credit diet changes, rest and pacing, LDN and Celebrex for slow gains, and Auvelity for their depression, though flare-ups…
-
Long COVID crashes and wrecked gut, now near normal on antihistamines and diet
Badger 97535 developed long COVID after a covid infection in early 2021. He worked through months of 2-4 hours' sleep early on, a wrecked gut, mast cell reactions and flu-like crashes after exercise. Antihistamines, keto and very-low-calorie diets, PEA,…