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Long COVID Moderate → no benefitIll for 17 months

Long COVID with chest, rib and back pain and brain fog; rib and back pain and fog continue

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
17 months
Last post
Jun 2023
In their words
  • Condition: Long COVIDI got covid pneumonia January 2022 I since then have had very bad Gerd chest pains In context ↗
  • At worst: ModerateI was getting pain where I was crying every night and ended up in the er every day for a whole month In context ↗
  • Now: No benefitthe rib pain and back pain can be the death of me I'm always suffering In context ↗
  • Began after: COVIDI got covid pneumonia January 2022 In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

Maple 95597 got COVID pneumonia in January 2022 and went on to have long COVID with severe GERD chest pain, rib, shoulder and back pain and worsening brain fog. The pain once had them crying nightly and visiting the emergency room every day for a month. The chest pain later cleared, but the rib and back pain and brain fog continued, and flares left them needing a dark room to lie down.

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What they tried

Their words about each treatment
  • benadryl · HelpedI also take a strong dose of benadryl at night and it knocks me out In context ↗
  • hydroxyzine hcl · HelpedI have the lowest dose 10mg and it's been helping In context ↗
  • ppi · Not saidhe gave me ppi and hydroxyzine hcl for my anxiety In context ↗
  • dark room and lay down · Helpedtimes where I just need a dark room and to lay down cause that's the only thing that works for me In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered12 mo15 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 11 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
January 2022COVID pneumonia, followed by long COVIDI got covid pneumonia January 2022 In context ↗Not stated
December 2022severe pain, crying every night, daily ER visits for a monthI was getting pain where I was crying every night and ended up in the er every day for a whole month In context ↗Moderate
2023-06-22GERD chest pain cleared; rib, shoulder and back pain and brain fog continuedthe rib pain and back pain can be the death of me I'm always suffering In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Gut problemsvery bad Gerd chest pains that's gone away thank God In context ↗
  • Pain & fibromyalgianow I get pain in my ribs right rib to be exact and really bad shoulder back pain In context ↗
  • Brain fogI also have bad Brian fog it's gotten worst In context ↗
  • Sleep problemsI also take a strong dose of benadryl at night and it knocks me out In context ↗
  • Anxiety & low moodhe gave me ppi and hydroxyzine hcl for my anxiety In context ↗
  • Light & noise sensitivitytimes where I just need a dark room and to lay down In context ↗

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Asking aboutMaple 95597’s story

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