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Long COVID Severe → much betterIll 3 years before improving or writing

Barely able to get off the couch with long COVID, much better with citicoline and omega-3

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
3 years
Last post
Sep 2023
In their words
  • Condition: Long COVIDMy life has been almost completely forked with long haul since I got OG covid in December 2020. In context ↗
  • At worst: SevereGetting up from the couch to get a little cup of nyquil was a monumental feat. In context ↗
  • Now: Much betterDuring that 48hr window, I have some safe exercises that I do like light yoga, walking, and stationary bike and in quantities that don't give me PEM. In context ↗
  • Began after: COVIDsince I got OG covid in December 2020
Read from 6 of their posts and comments; links to the 5 this page draws on

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Summary

Eagle 73163 got long COVID in December 2020 and was severely affected about six months later, barely able to get up from the couch. Self-experimenting with nootropics, especially citicoline, restored basic function, and omega-3 brought back their taste. They still have PEM with a 48-hour delay and by late 2023 managed light yoga, walking, a stationary bike and short runs. Vaccination did not help them.

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What they tried

Their words about each treatment
  • Citicoline (Cognizin) · HelpedStarted experimenting on myself with nootropics and found the chemical my body was missing and boom, was suddenly able to get that nyquil cup no problem. In context ↗
  • Nordic Natural’s ProOmega · HelpedIt gave me my taste back, independently from the other two supps In context ↗
  • Nootropics Depot Magnesium Threonate · HelpedWorks best for me with Nordic Natural’s ProOmega and Nootropics Depot Magnesium Threonate. In context ↗
  • vaxxed · No changegetting vaxxed would help with long haul covid symptoms (it didn't work for me but your mileage may vary) In context ↗
  • full body cryotherapy · HelpedWim Hof cold therapy does kind of help me, but only when I do full body cryotherapy. In context ↗
  • controlled exercise (light yoga, walking, stationary bike) · Helpedmy body actually loves it - if I do it right In context ↗

Approaches: Pacing · Supplements

Their path

Very severeSevereModerateMildNear normalRecovered6 mo12 mo18 mo2 y2.5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 6 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
December 2020COVID-19 (OG covid)My life has been almost completely forked with long haul since I got OG covid in December 2020 In context ↗Not stated
about six months after covidworst point of long haul; barely able to get off the couchGetting up from the couch to get a little cup of nyquil was a monumental feat In context ↗Severe
2021able to do basic tasks again after nootropics, other long haul problems remainedStarted experimenting on myself with nootropics and found the chemical my body was missing and boom, was suddenly able to get that nyquil cup no problem In context ↗Moderate
2023-09-06managing light yoga, walking, stationary bike and short runs around PEM, with some bedbound daysEven a day with a short, light run is better than a day being bedbound In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Brain fogFelt like my brain and nervous system in general were slogging through cement just to do basic tasks In context ↗
  • Muscle weaknessit was so hard for me to move or do anything In context ↗
  • Loss of smell or tasteIt gave me my taste back In context ↗
  • Post-exertional malaisetwo weeks later have PEM from the exact same thing In context ↗
  • Pain & fibromyalgiaImo it helps because of my EDS and fibro In context ↗

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