Long COVID with POTS and neuropathy, much better after IgG food cuts and rosuvastatin
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3 years
- Last post
- Oct 2026
In their words
- Condition: Long COVID
I'm kinda new to relating my POTS/MCAS/Neuropathy to post-vaccine injury
In context ↗ - At worst: Moderate
I stay home, do not go out unless totally necessary and mask when I do.
In context ↗ - Now: Much better
SO many things are better, like I can drive and sleep but the shakes are embarrassing
In context ↗ - Began after: a vaccination
got all my COVID vaccines and boosters and wham
In context ↗
Read from 13 of their posts and comments; links to the 11 this page draws on
Summary
After COVID vaccinations and a course of nitrofurantoin they believe they developed POTS, MCAS and neuropathy, stayed home a lot and ate a low-histamine diet with antihistamines. POTS eased after about six months, then returned after influenza A in early 2025. Cutting out nearly all IgG-flagged foods and starting rosuvastatin left them much better, though tremors and a lost singing voice remained.
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What they tried
What they credit
Also tried
Their words about each treatment
- cleaning every day for months · Helped
I had no choice except to clean every day for months. I felt better.
In context ↗ - low histamine diet · Helped
My symptoms slllloooooooooowly improved over a year being on a "mostly" low histamine diet
In context ↗ - antihistamines · Not said
I stay on a low histamine diet with antihistamines
In context ↗ - beta blockers · Worse
I tried two beta blockers-one gave me extreme fatigue and the other very itchy lungs.
In context ↗ - rosuvastatin · Helped a lot
I also was recently put on a statin (rosuvastatin) and suddenly felt MUCH better.
In context ↗ - IgG-guided food elimination · Helped a lot
I gave up all but 1 (chocolate) and felt SO MUCH better-I mean mentally and physically.
In context ↗ - probiotics · Helped
building back I can see how much probiotics are helping
In context ↗ - doing nothing til March · Not said
So I am literally doing NOTHING til March.
In context ↗ - COVID vaccination as treatment · Not said
got all my COVID vaccines and boosters and wham
In context ↗
Approaches: Diet · Exercise and activity · Statins · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 6 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | POTS and MCAS began after COVID vaccination and a course of nitrofurantoinI got POTS/MCAS after I believe vaccine and a round of NitrofurantoinIn context ↗ | Not stated | |
| after about 6 months | POTS began to subside on a low-histamine diet with antihistamines, neuropathy did notAfter about 6 months, my POTS began to subside, I stay on a low histamine diet with antihistamines, but my neuropathy is NOT subsidingIn context ↗ | Moderate | Low-histamine diet |
| late Jan 2025 | influenza A for a month, POTS came back; stayed home a lotI caught Influenza A in late Jan and I was sick for the entire month of FebIn context ↗ | Moderate | |
| January 2026 | cut out all IgG-flagged foods and started rosuvastatin; felt much betterI gave up all but 1 (chocolate) and felt SO MUCH better ... I also was recently put on a statin (rosuvastatin) and suddenly felt MUCH betterIn context ↗ | Mild | Elimination diets (other) |
| July 2026 | could drive and sleep again, tremors and lost voice remainedSO many things are better, like I can drive and sleep but the shakes are embarrassing and I'm hoping to start teaching crafting classes soonIn context ↗ | Mild | |
| October 2026 | better after three years of MCAS and POTSI had MCAS/POTS for 3 years-am better nowIn context ↗ | Mild |
Adverse events
- “I was very sick after childhood shots, for YEARS” In context ↗ Other
- COVID vaccination as treatment“got all my COVID vaccines and boosters and wham” In context ↗ Other
- Beta-blockers (unspecified)“I tried two beta blockers-one gave me extreme fatigue and the other very itchy lungs.” In context ↗ Side effects
- Beta-blockers (unspecified)“the other very itchy lungs. So my cardiologist put Beta-blockers on my allergy list” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
After about 6 months, my POTS began to subside
In context ↗ - Mast cell (MCAS) & allergies
I had MCAS/POTS for 3 years-am better now
In context ↗ - Neuropathy & tingling
my neuropathy is NOT subsiding, which is scary
In context ↗ - Sleep problems
SO many things are better, like I can drive and sleep
In context ↗
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