Bedridden six weeks with long COVID, now much better on beta-blockers and antihistamines
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Aug 2026
In their words
- Condition: Long COVID
Made pre-existing POTS (and likely pre-existing MCAS) worse, so got diagnosed with LC.
In context ↗ - At worst: Severe
i went from being completely bedridden and struggling to write a 1-sentence text message for 6+ weeks
In context ↗ - Now: Much better
things have improved for me immensely from when i first got covid. but i don’t think i’ll ever be how i was before.
In context ↗ - Began after: COVID
03/31/2022 - contracted Covid (while having a POTS flare).
In context ↗
Read from 17 of their posts and comments; links to the 10 this page draws on
Summary
Tundra 48918 developed long COVID after a COVID infection on 31 March 2022 during a POTS flare and was completely bedridden for over six weeks. Beta-blockers and H1 antihistamines cleared most brain fog, and by spring 2024 they had completed a Master's, though they still get PEM. They do not expect full recovery.
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What they tried
What they credit
Also tried
Their words about each treatment
- resting · Helped
i’ve slowly been getting better mostly via resting
In context ↗ - beta-blocker · Helped a lot
a beta-blocker + H1 antihistamine have all but eliminated my brain fog
In context ↗ - LiquidIV · Helped
sometimes my eye symptoms will improve just by eating or drinking water with LiquidIV
In context ↗ - Meloxicam · Not said
Ended up later taking Meloxicam (which my neurologist gave me for these inflammation migraines) and once I stopped this medication things have been fine since.
In context ↗ - psychiatric medication · Helped a lot
have lived the last few years in virtual remission thanks to psychiatric medication
In context ↗ - Pfizer and Novavax COVID vaccines · Not said
also the novavax vaccine
In context ↗ - Elara app · Helped
i HIGHLY recommend the app Elara. it's really excellent when i manage to keep up with it
In context ↗ - active rest · Helped
i think active rest has worked fine for me but i think i might be better overall (or get over PEM faster) if i did passive rest
In context ↗
Approaches: H1 antihistamines · Beta-blockers · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022-03-31 | COVID infection during a POTS flare; bedridden for about six weeks03/31/2022 - contracted Covid (while having a POTS flare).In context ↗ | Severe | |
| 2022-09-21 | slowly improving with meds and rest; school wipes them outmy meds work pretty well and i’ve slowly been getting better mostly via resting.In context ↗ | Mild | |
| 2022-11-20 | beta-blocker plus H1 antihistamine all but eliminated brain fog; felt like old self 90% of the timea beta-blocker + H1 antihistamine have all but eliminated my brain fogIn context ↗ | Near normal | Beta-blockers (unspecified) |
| 2024 spring | completed a Master's after being bedriddento completing my Masters this last springIn context ↗ | Mild | |
| 2026-08-08 | still paces and gets PEM; active rest works but passive rest might be betteractive rest has worked fine for me but i think i might be better overall (or get over PEM faster) if i did passive restIn context ↗ | Mild |
Adverse events
- COVID vaccination as treatment“My first Pfizer shot gave me very weird migraines that came on very quickly, only lasted a few hours but happened every day” In context ↗ Side effects
- COVID vaccination as treatment“2nd booster 6/22 - migraines from first shot returned but more painful and didn't disappear quickly.” In context ↗ Side effects
- Fexofenadine (Allegra)“i’ve now stopped allegra and i feel less bloated and might be losing weight but i don’t want to check yet” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
i think i might be better overall (or get over PEM faster) if i did passive rest
In context ↗ - Brain fog
a beta-blocker + H1 antihistamine have all but eliminated my brain fog
In context ↗ - Headaches & migraine
My first Pfizer shot gave me very weird migraines
In context ↗ - Gut problems
i feel less bloated
In context ↗ - Flu-like symptoms
pretty much just the ones under my jaw
In context ↗
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