Long COVID with fatigue, brain fog, pain and POTS, somewhat better with Ozempic
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 8 months
- Last post
- Dec 2024
In their words
- Condition: Long COVID
I have long covid (may 22)
In context ↗ - At worst: Moderate
back then it was too exhausting for me to write a lot in text form to have a lot of info
In context ↗ - Now: Somewhat better
I did notice improvement in my energy levels ... still have a lot of LC symptoms
- Began after: COVID
I have long covid (may 22)
In context ↗
Read from 7 of their posts and comments; links to the 6 this page draws on
Summary
Long COVID since May 2022 left them with fatigue, brain fog, pain, IBS, anxiety and POTS. Ozempic, begun in September 2022 for PCOS, slowly improved their energy, joint pain, IBS and brain fog. Stopping it for surgery in summer 2024 brought symptoms back; restarting helped tremendously, but they still had many symptoms in December 2024. Zoloft eased mood but worsened dysautonomia, and methotrexate made them more fatigued.
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What they tried
Also tried
Their words about each treatment
- hydroxychloroquine · Not said
I had a diagnostic of seronegative RA right before long covid, it got worse after my covid infection, I was put on hydroxychloroquine.
In context ↗ - methotrexate · Worse
Then, we added methotrexate (subcutaneous) and I swear I didn’t get better 😅 I was more fatigued, nauseous
In context ↗ - symptom journal (ratings out of ten) · Not said
I kept it to numbers out of ten
In context ↗ - ozempic · Helped a lot
It took quite a while (because it takes time to up the dosage) but I did notice improvement in my energy levels
In context ↗ - leflunomide · No change
got switched on leflunomide and still have a lot of LC symptoms
In context ↗ - Zoloft · Worse
Now after 8 weeks I am at 100mg ... it is making my dysautonomia symptoms worse for sure
In context ↗ - Concerta · Not said
I get this from my Concerta for the first couple of hours after taking it
In context ↗ - occupational therapist and pacing · Helped
I started seeing an occupational therapist, she helped me a ton on a lot of issues.
In context ↗ - wood blocks under the bedframe to raise the head of the bed · Helped
two 5 inches wood blocks under my bedframe so the bed is slightly up at the head, way better than pillows ... It helps me a lot
In context ↗
Approaches: GLP-1 drugs · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| May 2022 | long COVID onsetI have long covid (may 22)In context ↗ | Moderate | |
| 2022-2023 | energy, joint pain, IBS, anxiety and brain fog improved after Ozempic dose titration; could read a book in her second language againI did notice improvement in my energy levels, joints pain (Rheumatoid arthritis), IBS, anxiety, recurring negative thoughts, brain fog. ... I could read a book in my second language again !In context ↗ | Mild | Semaglutide (Ozempic, Wegovy) |
| summer 2024 | stopped Ozempic for surgery; symptoms returned within a monthI had to stop this summer for a surgery and after a month, these symptoms came back slowly but surely.In context ↗ | Mild | |
| 2024-11-05 | Zoloft worsened dysautonomia symptomsit is making my dysautonomia symptoms worse for sure.. POTS, fatigue, dizziness, tachycardia, dyspepsia and so on came back with vengance.In context ↗ | Mild | |
| 2024-12-01 | restarted Ozempic, helping tremendously, but still many long COVID symptomsIt is helping tremendously. ... still have a lot of LC symptoms | Mild | Semaglutide (Ozempic, Wegovy) |
Adverse events
- Sertraline (Zoloft)“it is making my dysautonomia symptoms worse for sure.. POTS, fatigue, dizziness, tachycardia, dyspepsia and so on came back with vengance.” In context ↗ Made symptoms worse
- Sertraline (Zoloft)“bur Zoloft made it worse… but my overall mood better” In context ↗ Side effects
- Methylphenidate (Ritalin, Concerta)“I get this from my Concerta for the first couple of hours after taking it” In context ↗ Side effects
- Methotrexate“Then, we added methotrexate (subcutaneous) and I swear I didn’t get better 😅 I was more fatigued, nauseous” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I get PEMs from mental activity or stress
In context ↗ - POTS & dysautonomia
POTS, fatigue, dizziness, tachycardia
In context ↗ - Gut problems
dyspepsia and so on came back with vengance
In context ↗ - Pain & fibromyalgia
joints pain (Rheumatoid arthritis)
In context ↗ - Anxiety & low mood
relief from anxiety/depression it is giving me
In context ↗ - Light & noise sensitivity
every noise makes me cringe by 3pm
In context ↗
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