Long COVID
Mild → near normalIll 17 months before improving or writing
Long COVID fatigue, working from home with naps, now nearly back to normal
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 17 months
- Last post
- Jun 2022
In their words
- Condition: Long COVID
I got long COVID from the original variant.
In context ↗ - At worst: Mild
I'm currently still working and living on my own, though I have cut back working to 6/7 hours a day to provide some breathing room.
In context ↗ - Now: Near normal
After recovering (which didn't take a month this time) I only have a very slight shortness of breath and I'm a bit more prone to throat ache/dry nose/ear problems.
In context ↗ - Began after: glandular fever or EBV
I got mono in April-ish 2020, the symptoms stuck and then I got COVID on top of it in September/October 2020.
In context ↗
Read from 11 of their posts and comments; links to the 7 this page draws on
Summary
Maple 45339, in the Netherlands, developed lasting fatigue after mono in April 2020 and became more ill after COVID in September 2020. They kept working from home six to seven hours a day with naps, and around autumn 2021 began improving, though symptoms fluctuated. An Omicron reinfection in March 2022 passed with little lasting effect, though slight breathlessness and throat, nose and ear trouble remained; daily fatigue continued with no significant overall change.
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What they tried
Also tried
Their words about each treatment
- cutting back work hours to 6/7 a day and napping before lunch · Helped
I have cut back working to 6/7 hours a day to provide some breathing room ... Napping for 25-30 min around lunch time greatly improves this
- Pfizer shots and booster · No change
I've had 2 normal Pfizer shots and a Pfizer booster after getting COVID ... It also hasn't helped with recovery really, it was neutral.
In context ↗ - supplements · No change
Other blood values were either fine, or were fixed with supplements (which did not resolve the fatigue).
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| April-ish 2020 | Mono with lasting fatigue, enlarged spleen, alcohol intoleranceI got mono in April-ish 2020, the symptoms stuck and then I got COVID on top of it in September/October 2020.In context ↗ | Mild |
| September/October 2020 | Caught COVID, felt ill ever sinceAt the end of September I caught COVID. Not sure where or how.In context ↗ | Mild |
| mid-2021 | Deepest point, working 6/7 hours a day and deteriorating on moreOne or 2 months ago I was in one of the deepest points yet, now I'm constantly improving it seems.In context ↗ | Mild |
| October 2021 | Began improving steadily, back to parties and 6 hours a day of work from homenow I'm constantly improving it seemsIn context ↗ | Mild |
| March 2022 | Omicron reinfection, worse illness than the first timeI got Omicron about a month ago (which I was kinda expecting already tbh).In context ↗ | Mild |
| April 2022 | Recovered from Omicron quickly, only slight remaining symptomsI only have a very slight shortness of breath and I'm a bit more prone to throat ache/dry nose/ear problems.In context ↗ | Near normal |
Adverse events
- COVID vaccination as treatment“Arguably the 2nd shot caused a 2-week mild increase in fatigue” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBreathlessnessFlu-like symptomsMuscle weaknessPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaise
Their words about their symptoms
- Post-exertional malaise
Office days usually require multi-day recovery before the effects are completely gone
In context ↗ - POTS & dysautonomia
Just after COVID I was definitely ruined and couldn't really do anything without getting dizzy, but within a month that slowly fixed itself
In context ↗ - Pain & fibromyalgia
Main symptoms where cough, muscle ache, and fatigue.
In context ↗ - Muscle weakness
My muscles felt absolutely ruined and I couldn't stand for long.
In context ↗ - Flu-like symptoms
I still have throat ache, nose problems, ear problems and worst of all fatigue.
In context ↗ - Breathlessness
I only have a very slight shortness of breath
In context ↗ - Anxiety & low mood
When it got worse I started getting more negative and hopeless, which only makes it worse.
In context ↗