Severe cognitive symptoms and daily crashes with ME/CFS, somewhat better on amantadine
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2021
In their words
- Condition: ME/CFS
Long-lasting crashes brought on easily by cognitive exertion.
In context ↗ - At worst: Severe
I'm still not able to work at all or function alone
In context ↗ - Now: Somewhat better
it felt like such an upgrade to my existence
In context ↗
Summary
Shore 32094 had severe cognitive symptoms, sensory overload, daily crashes and body aches; they were unable to work or function alone. A neurologist prescribed amantadine, which they said made them conscious and able to watch TV, a narrow but significant gain; they still could not work or function alone. Ritalin kept them conscious but caused severe anxiety.
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What they tried
What they credit
Also tried
Their words about each treatment
- amantadine · Helped
It doesn't help my memory or with physical exhaustion or body aches but it is the reason I am conscious. The effect is hard to explain: it's pretty narrow but it is an order of magnitude more significant than that which anything else has given me.
In context ↗ - Ritalin · Worse
Oh also lots of Ritalin seemed to keep me conscious but was anxiety inducing af.
In context ↗
Approaches: Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | severe cognitive symptoms, sensory overload and daily crashesMy cognitive symptoms are quite severe. Dimentia, sensory overload, hypersensitivity, daily crashes & daily "fever" time exacerbated by very little cognitive exertion.In context ↗ | Severe | |
| 2021-10-03 | amantadine made them conscious and able to watch TVNeurologist put me on amantadine and it's the reason I can watch TV.In context ↗ | Severe | Amantadine |
| 2021-10-03 | still unable to work or function alone despite amantadineI'm still not able to work at all or function aloneIn context ↗ | Severe | Amantadine |
Adverse events
- Methylphenidate (Ritalin, Concerta)“Oh also lots of Ritalin seemed to keep me conscious but was anxiety inducing af.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
My cognitive symptoms are quite severe.
In context ↗ - Post-exertional malaise
daily crashes & daily "fever" time exacerbated by very little cognitive exertion.
In context ↗ - Light & noise sensitivity
sensory overload, hypersensitivity
In context ↗ - Flu-like symptoms
daily "fever" time
In context ↗ - Sleep problems
Anything that lets me sleep properly and doesn't leave drowsy wakeup effects
In context ↗
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