ME/CFS
Severe → somewhat betterIll 4 years before improving or writing
Daily migraines and ME/CFS, unable to work; somewhat better on atogepant and creatine
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
I recently saw my neuro put CFS on my chart
In context ↗ - At worst: Severe
can't work anymore since around a year where the migraines are life altering (need much care and help from my husband, eating, washing my hair, household etc)
In context ↗ - Now: Somewhat better
Fatigue, Brain fog and pain levels are better. Reduced symptoms give me a way better quality of life even do I still can't do more lmao.
In context ↗ - Began after: COVID
only after COVID it got worse and is daily since
In context ↗
Read from 17 of their posts and comments; links to the 5 this page draws on
Summary
After COVID in 2022 her migraines became daily, and by 2025 they were life-altering: she stopped working and needed her husband's help with eating and washing her hair. Her neurologist added CFS to her chart. Aquipta (atogepant) was the only drug that helped, easing fatigue, brain fog and pain intensity, though she still could not do more; creatine 3 g daily helped cognitive fatigue. Triptans caused severe side effects.
Ask Miruvor AI
What they tried
Also tried
Aquipta / Atogepant· Helpede Scooter· Helpedcreatine· Helpedpain killers· No changetriptans· Much worse
Their words about each treatment
- pain killers · No change
since my migraines got worse pain killers do NOTHING
In context ↗ - triptans · Much worse
I suddenly developed severe side effects to triptans ... The triptan side effects were SO MUCH worse than the migraine?!!
- Aquipta / Atogepant · Helped
Aquipta is the only thing that made a difference. Fatigue, Brain fog and pain levels are better.
In context ↗ - e Scooter · Helped
I got an e Scooter ... and I'm pretty happy with it. ... Mine costs like 300$ and was worth every penny.
In context ↗ - creatine · Helped
Cognitive fatigue : creatine 3g a day helped me a lot
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022 | migraines became daily after COVID; still workingonly after COVID it got worse and is daily sinceIn context ↗ | Mild | |
| 2025 | migraines life-altering; stopped working and needed help with eating, hair washing and householdcan't work anymore since around a year where the migraines are life altering (need much care and help from my husband, eating, washing my hair, household etc)In context ↗ | Severe | |
| 2026-04-19 | Aquipta eased fatigue, brain fog and pain but they still cannot do moreAquipta is the only thing that made a difference. Fatigue, Brain fog and pain levels are better.In context ↗ | Severe | |
| 2026-10-10 | creatine helped cognitive fatigue; still limitedCognitive fatigue : creatine 3g a day helped me a lotIn context ↗ | Severe | Creatine |
Adverse events
- Triptans (unspecified)“I suddenly developed severe side effects to triptans ... The triptan side effects were SO MUCH worse than the migraine?!! It was hell” Side effects
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
only after COVID it got worse and is daily since
In context ↗ - Brain fog
Fatigue, Brain fog and pain levels are better
In context ↗ - Pain & fibromyalgia
the leg aches and all other symptoms are so bad now
In context ↗ - Gut problems
I recently had stomach issues where I just didn't know if it's the migraines or something else entirely
In context ↗ - Mast cell (MCAS) & allergies
I can't wash my hand with water and soap due to allergies
In context ↗