Mostly in bed for months with long COVID, much better and back at work after pacing
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2.5 years
- Last post
- Nov 2024
In their words
- Condition: Long COVID
I got Covid last July and ended up off work for 6 months, as I ended up with Long Covid.
In context ↗ - At worst: Severe
I spent months where I was mostly in bed.
In context ↗ - Now: Much better
I'm nowhere near as bad as I was now and I'm back at work.
In context ↗ - Began after: COVID
I got Covid last July and ended up off work for 6 months
In context ↗
Read from 12 of their posts and comments; links to the 8 this page draws on
Summary
After catching COVID in July 2022 they were mostly in bed for months and off work for six months with long COVID: fatigue, brain fog, muscle pain and crashes. The best help they got was pacing explained by an occupational health doctor, and they credited that advice. They returned to work, but were still exhausted much of the time, needing naps and staying near their limit. Over two years on they were still limited at their last post.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- pacing · Helped
This is exactly how pacing was explained to me ... I would say it's really helpful
In context ↗ - painkillers · No change
painkillers have had little to no effect
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| July 2022 | Caught COVID, developed long COVID, mostly in bed and off workI got Covid last July and ended up off work for 6 monthsIn context ↗ | Severe | |
| 2023-05 | Considerable progress and back at work, still fatiguedI've made considerable progress since last year but still suffer with fatigueIn context ↗ | Mild | Pacing and the energy envelope |
| 2023-08 | Crashed after a week's holiday with challenging walksafter the holiday, it's eventually caught upIn context ↗ | Mild | |
| 2024-11-08 | Over two years in, back at work but still fatigued, foggy and in muscle painI'm over two years in of having Long Covid and the main symptoms are Fatigue, brain fog and muscle painsIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I go slightly over and crash
In context ↗ - Brain fog
when it kicks in, it becomes difficult to carry out simple tasks
In context ↗ - Pain & fibromyalgia
the main symptoms are Fatigue, brain fog and muscle pains, wjivh is mainly in my legs
In context ↗ - Muscle weakness
My body would also become weak at the same time as the brain fog started.
In context ↗ - Sleep problems
I've had to sleep twice today and will probably have messed up tonight's sleep due to that
In context ↗
Ask Miruvor AI
Similar stories
-
Unable to walk around house with long COVID, much better after pacing and antihistamines
A Canadian man with long COVID for about three years was unable to walk around the house for the first two years, with constant migraines, brain fog and PEM. From year three, pacing, rest, stress reduction, H1/H2 antihistamines, hydroxyzine for sleep,…
-
Mostly bedbound and housebound with ME/CFS, pacing and rest helped before a relapse
Valley 16092 has had ME/CFS and fibromyalgia for about 25 years; stress and lifelong health problems led to a crash from 60-hour workweeks. They never became severe but have been mostly bedbound and housebound, and pacing, rest and comorbidity medication…
-
Mostly housebound with ME/CFS, now a little better on Klonopin and low-dose naltrexone
Joseph, 47, in Los Angeles, developed ME/CFS in January 2024, about 18 days after a second COVID infection. He declined from mild to the bad end of moderate over six months, becoming mostly housebound. Klonopin, low-dose naltrexone, midodrine and propranolol…
-
Long COVID brain fog, somewhat better with nicotine patch and naltrexone
Pebble 25278 developed long COVID with brain fog, distorted smell, headaches, nerve pain and trouble sleeping. A quarter of a 10 mg nicotine patch restored much of their speech and thinking, and low-dose naltrexone further raised their cognitive and physical…