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ME/CFS Moderate → no benefitIll for 14 years

Chronic pain and fatigue for 14 years with ME/CFS; rollator use limited by nerve damage

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
14 years
Last post
Jan 2023
In their words
  • Condition: ME/CFSI have ME/CFS and chronic pain and fatigue has been a part of my life for 14 years. In context ↗
  • At worst: ModerateI have a rollator as you call it. The good part is having a chair with you at all points can help. Beeing able to sot and rest is really helpful In context ↗
  • Now: No benefitchronic pain and fatigue has been a part of my life for 14 years. In context ↗
Read from 3 of their posts and comments; links to the 2 this page draws on

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Summary

A Reddit user who has had ME/CFS with chronic pain and fatigue for 14 years uses a rollator, which gives them a seat to rest on, but nerve damage in their neck and shoulders stops them using it properly. They have taken it into forests and shared makeup tips for disguising a tired look when out and about.

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What they tried

Also tried

Their words about each treatment
  • rollator · Not saidMy problem is nerve-damage in my neck and shoulders, so I am not able to properly use it In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
onsetME/CFS with chronic pain and fatigue beganI have ME/CFS and chronic pain and fatigue has been a part of my life for 14 years. In context ↗Not stated
2022-08-28uses a rollator for support and rest, limited by nerve damage in neck and shouldersI have a rollator as you call it. ... My problem is nerve-damage in my neck and shoulders, so I am not able to properly use it In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiaI have ME/CFS and chronic pain and fatigue has been a part of my life for 14 years. In context ↗
  • Neuropathy & tinglingMy problem is nerve-damage in my neck and shoulders In context ↗

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