Long COVID with constant crashes and stopped leaving home, now loads better
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 16 months
- Last post
- Mar 2022
In their words
- Condition: Long COVID
What are the simplest ways to treat long covid?
In context ↗ - At worst: Severe
I was constantly crashing, even after dropping out of University and giving up my job. In November I decided to stop leaving the house altogether
In context ↗ - Now: Much better
I’m 16 months in, loads better than I was thankfully but still suffer with CFS symptoms and tachycardia.
In context ↗ - Began after: COVID
I’m 16 months in, loads better than I was thankfully but still suffer with CFS symptoms and tachycardia.
In context ↗
Summary
Bluebell 71118 dropped out of university and gave up work because of long COVID and was constantly crashing. From November they stopped leaving the house and cut back cleaning and cooking; after a few weeks brain fog, muscle aches and despair eased. A February 2022 day out left them feeling poor but no full crash. At 16 months they were loads better, still with CFS symptoms and tachycardia.
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What they tried
Also tried
Their words about each treatment
- stopping leaving the house and scaling back everything · Helped a lot
After a few weeks I realised that I didn’t feel like crap all the time, and my mental health also really improved. The brain fog went, the muscle aches vanished
In context ↗ - reintroducing daily activities · Not said
I’ve been reintroducing daily activities, such as walking to the shop and more thorough cleaning.
In context ↗ - vitamin D · Not said
I take vitamin D anyway because I’m in the UK but nothing else atm
In context ↗ - trying to eat healthy · Not said
nothing else atm apart from trying to eat healthy
In context ↗
Approaches: Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| November 2020 | constantly crashing, dropped out of university and gave up jobI was constantly crashing, even after dropping out of University and giving up my job.In context ↗ | Severe | |
| November 2021 | stopped leaving the house, scaled back cleaning and cooking; stabilisedAfter a few weeks I realised that I didn’t feel like crap all the time, and my mental health also really improved. The brain fog went, the muscle aches vanishedIn context ↗ | Moderate | Radical rest |
| February 2022 | day out with friends left them feeling like crap, no full crashI’ve felt like crap since then, but I definitely haven’t full on crashed.In context ↗ | Moderate | |
| 2022-03-19 | loads better but still CFS symptoms and tachycardia, mostly houseboundI’m 16 months in, loads better than I was thankfully but still suffer with CFS symptoms and tachycardia.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
when I’m about to crash I get a weird feeling like something’s about to rip or break in my body
In context ↗ - Brain fog
with my brain fog the information is all too overwhelming for me
In context ↗ - Pain & fibromyalgia
the muscle aches vanished
In context ↗ - Anxiety & low mood
the random bouts of despair disappeared
In context ↗ - Heart symptoms & palpitations
still suffer with CFS symptoms and tachycardia
In context ↗
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