Long COVID with migraines, brain fog and fatigue, somewhat better with pacing and meditation
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 8 months
- Last post
- Apr 2023
In their words
- Condition: Long COVID
I am only 4 months in long Covid
In context ↗ - At worst: Severe
Now all I do is lay down in bed all day praying for this to go away.
In context ↗ - Now: Somewhat better
It does seem to help a lot. Symptoms are still here, but I am learning through the process.
In context ↗ - Began after: COVID
Post Covid symptoms (August 2022)
Read from 16 of their posts and comments; links to the 13 this page draws on
Summary
A Reddit user who developed long COVID in August 2022, with migraines, light sensitivity, dizziness, anxiety, brain fog, muscle pain and fatigue. Migraine glasses eased symptoms and vestibular therapy helped dizziness a little; eye drops, supplements, CBD and hydroxyzine did little or were unclear. Breathing exercises, meditation and pacing helped. A flu brought symptoms back full force, and a cold worsened anxiety, brain fog and fatigue; overdoing caused a crash. By April 2023 symptoms remained, though they had felt somewhat better before the crash.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- Migraine glasses · Helped
Migraine glasses seem to ease the symptoms.
In context ↗ - Polarized sunglasses · Helped
Polarized sunglasses help a little.
In context ↗ - Eye drops · Not said
I was using eye drops, but I haven't used them in some weeks now.
In context ↗ - Vestibular therapy · Helped
I did Vestibular therapy for a month and seemed to help a little the dizziness.
In context ↗ - transdermal patches that have vitamins B, D, magnesium · Not said
For anxiety, I've tried transdermal patches that have vitamins B, D, magnesium.
In context ↗ - kava · Helped
I support the kava and chamomile tea options. They also help me.
In context ↗ - THC · Worse
I tried THC before and it made it worse
In context ↗ - CBD · No change
I have tried lions mane, turmeric, omega 3, CBD, hydroxyzine, DLPA. Symptoms are still there.
In context ↗ - vitamins B, C, D and magnesium · Not said
I switched to just CBD and vitamins B, C, D and magnesium.
In context ↗ - deep breathing exercises · Helped
I started practicing breathing exercises and meditation about a month ago. It does seem to help a lot.
In context ↗ - pacing · Not said
Another big thing is to pace. Rest as much as we can.
In context ↗
Approaches: Mind-body practices
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 7 months after onset: the story doesn’t say how ill they were before that. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| August 2022 | long COVID onset after CovidPost Covid symptoms (August 2022) : dizziness/balance, extreme anxietyIn context ↗ | Not stated | |
| March 2023 | caught the flu, all symptoms returned full forceI recently got sick with the flu and all the symptoms came back full force.In context ↗ | Not stated | |
| March 2023 | cold worsened anxiety, brain fog and fatigueAnxiety, brain fog and fatigue got worse after getting a cold.In context ↗ | Not stated | |
| March 2023 | in bed all day, fight-or-flight most of the dayNow all I do is lay down in bed all day praying for this to go away.In context ↗ | Severe | |
| April 2023 | felt better for two weeksI felt better the past 2 weeksIn context ↗ | Mild | |
| April 2023 | crashed after overdoing itbut I crashed this weekend from overdoingIn context ↗ | Mild | |
| April 2023 | breathing exercises and meditation helping a lotIt does seem to help a lot. Symptoms are still here, but I am learning through the process.In context ↗ | Mild | Meditation, yoga, breathwork |
| April 2023 | still symptomatic but learning to pace and restSymptoms are still here, but I am learning through the process.In context ↗ | Mild |
Adverse events
- Cannabis (THC, marijuana)“I tried THC before and it made it worse so I switched to just CBD” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
I developed headaches/migraines along with terrible light sensitivity about 2 months post Covid
In context ↗ - Light & noise sensitivity
I have bad light sensitivity that makes the Dr/dp increase
In context ↗ - Vision problems
Light sensitivity and dry eyes
In context ↗ - Anxiety & low mood
extreme anxiety (currently the worst symptom) DR/DP
In context ↗ - Brain fog
For me the brain fog is pretty bad where I feel confused most of the time
In context ↗ - Post-exertional malaise
I felt better the past 2 weeks, but I crashed this weekend from overdoing
In context ↗ - Pain & fibromyalgia
light sensitivity, muscle pain, visible blue veins in hands
In context ↗ - POTS & dysautonomia
dizziness/balance, extreme anxiety
In context ↗ - Sleep problems
headaches/migraine, nightmares/vivid dreams
In context ↗ - Hair loss
The only things that have gone away so far are the hair loss and stomach issues.
In context ↗
Ask Miruvor AI
Similar stories
-
ME/CFS at rock bottom, now much better but still often in bed with pacing
Cedar 14930 has had ME/CFS for over 30 years, with a sudden flu-like onset, and deteriorated until hitting rock bottom around 11 years before 2020; since then they have improved but remain far from well, often spending 16–23 hours a day in bed and unable to…
-
Moderate long COVID with brain fog and PEM, somewhat better with omega-3 and pacing
Otter 31595, a 46-year-old man, had mild long COVID from August 2021 and moderate illness after a third COVID infection in July 2023: brain fog, breathlessness, heavy limbs and PEM. After 2.5 years of no progress he reported brain fog and breathlessness…
-
Bedbound at worst with ME/CFS after COVID, now somewhat better with pacing
A person in New Zealand became ill with COVID around mid-2022. They worsened for 14 months to severe and bedbound, and are not working. Pacing, an electric wheelchair, mast-cell and arthritis drugs, and vitamin D later brought them to mild (moderate side of…
-
Long COVID breathlessness and severe anxiety, somewhat better with low-histamine diet
Hill 66692, a woman in her late sixties, developed long COVID in October 2022 with histamine intolerance, breathlessness, severe anxiety and neuropathy. A massage three weeks after testing negative left her barely able to move, and she was largely isolated…