ME/CFS
Severe → recoveredIll 21 months before improving or writing
Bedbound some days with ME/CFS, now recovered, crediting spontaneous recovery
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 21 months
- Last post
- Dec 2024
In their words
- Condition: ME/CFS
diagnosed with covid induced CFS
In context ↗ - At worst: Severe
I was bedbound 23+ hours a day on some days and couldn't use any screens
In context ↗ - Now: Recovered
all my ME/CFS symptoms have gone
In context ↗ - Began after: COVID
I had a covid infection in December 2022
In context ↗
Read from 15 of their posts and comments; links to the 7 this page draws on
Summary
A 22-year-old in the UK developed fatigue and brain fog after a COVID infection in December 2022; he was diagnosed with COVID-induced CFS in February 2024. By September 2024 he was bedbound more than 23 hours a day on some days. He improved rapidly from early October and by month's end all his ME/CFS symptoms had gone; he credits spontaneous recovery rather than the LDN or supplements he had tried, though electrolyte drinks may have helped slightly.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- diazepam · Helped
it gave me enough energy to take a shower
In context ↗ - LDN · Not said
which I thought was the cause of my improvement, but when I stopped the LDN I continued to improve
In context ↗ - electrolyte drinks · Helped
I think electrolyte drinks might’ve helped a tad
In context ↗ - multivitamins · No change
nothing else that really clicked for me
In context ↗ - short daily walks, built up · Helped
it has definitely helped my body recover a bit from all the months I spent sick in bed
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| December 2022 | COVID infection, then gradually worsening fatigue and brain fogI had a covid infection in December 2022In context ↗ |
| mid 2024 | PEM after a walk that lowered his baselineA few months back I had PEM the day after a walk I went on which lasted for a few days and hugely lowered my baselineIn context ↗ |
| September 2024 | bedbound 23+ hours a day, unable to use screensThis September there were many days where I was bedbound for 23+ hours a dayIn context ↗ |
| early October 2024 | rapid improvement; able to walk and use PCThe last week has been better; I've been able to go for 5-10 minute walksIn context ↗ |
| end of October 2024 | all ME/CFS symptoms goneby the end of the month all my symptoms had vanishedIn context ↗ |
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessFlu-like symptomsGut problemsHeadaches & migraineHeart symptoms & palpitationsLight & noise sensitivityMuscle weaknessPost-exertional malaiseSleep problems
Their words about their symptoms
- Post-exertional malaise
I had PEM the day after a walk I went on which lasted for a few days
In context ↗ - Brain fog
severe fatigue and brain fog
In context ↗ - Sleep problems
my most notable symptoms have been unrefreshing sleep
In context ↗ - Gut problems
digestive issues
In context ↗ - Headaches & migraine
I had pressure headaches a lot
In context ↗ - Heart symptoms & palpitations
heart palpitations and breathing problems
In context ↗ - Muscle weakness
was unable to sit or stand for any length of time
In context ↗ - Light & noise sensitivity
unable to even look at my phone screen for more than 10 minutes
In context ↗ - Anxiety & low mood
I haven’t really felt 100% yet because I have other physical/mental problems
In context ↗