Long COVID stopped them walking across the house; much better after vaccination
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 7 months
- Last post
- Feb 2022
In their words
- Condition: Long COVID
I got COVID in January 2021. Since I couldn't even walk from one end of my house to the other without symptoms
In context ↗ - At worst: Severe
Since I couldn't even walk from one end of my house to the other without symptoms I never went back to working out.
In context ↗ - Now: Much better
August 2021: Vaccinated and saw drastic improvement ... February 2022: Finally able to begin working out again (I was a runner before covid)
In context ↗ - Began after: COVID
January 2021: COVID
Summary
They caught COVID in January 2021; tingling, fevers, hair loss and rashes followed, then in April heart and breathing problems stopped them walking across their house. A COVID vaccination in August 2021 brought drastic improvement, stopping the tingling, rashes and hair loss and lowering their resting heart rate, though chest pain, palpitations and breathlessness persisted in episodes. By February 2022 they could do 15-minute easy workouts, limited by their heart beating weirdly.
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What they tried
What they credit
Also tried
Their words about each treatment
- getting vaccinated · Helped a lot
August 2021: Vaccinated and saw drastic improvement.
In context ↗ - easy elliptical workouts · Not said
I just finally started again this month. ... I'm only doing about 15 minute easy elliptical workouts right now.
Approaches: Vaccination
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| January 2021 | COVID-19 followed by tingling, low-grade fever, hair loss and rashesImmediately following: back tingling, low grade fever for months, hair loss, rashes.In context ↗ | Not stated | |
| Early April 2021 | sudden heart and breathing problems; could no longer do anything without symptomsI couldn't even walk from one end of my house to the other without symptomsIn context ↗ | Severe | |
| August 2021 | COVID vaccination brought drastic improvement; tingling, rashes and hair loss stopped, resting heart rate lowered, less breathlessnessAugust 2021: Vaccinated and saw drastic improvement.In context ↗ | Mild | COVID vaccination as treatment |
| February 2022 | able to begin working out again with short easy elliptical sessions, still getting odd heartbeatsFebruary 2022: Finally able to begin working out again (I was a runner before covid)In context ↗ | Mild |
Adverse events
- Everyday exercise and activity“I'm only doing about 15 minute easy elliptical workouts right now. And even at that, or doing a longer walk, I will begin to feel my heart beating weirdly.” In context ↗ Heart rhythm problems
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
burning in hands and feet stopped, tingling in back stopped
In context ↗ - Hair loss
Hair loss stopped
In context ↗ - Temperature regulation
low grade fever for months
In context ↗ - Heart symptoms & palpitations
still having episodes of chest pain, palpitations, shortness of breath, here and there
In context ↗ - POTS & dysautonomia
high heartrate, dizziness
In context ↗ - Breathlessness
Less shortness of breathe. But still having episodes of chest pain, palpitations, shortness of breath
In context ↗
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