ME/CFS
Moderate → no benefitNeeds ongoing treatment
CFS at the mild end of moderate with fibromyalgia, no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Jan 2025
In their words
- Condition: ME/CFS
I have severe IBS as well as fibro and CFS
In context ↗ - At worst: Moderate
I’m at the mild end of moderate though, so YMMV.
In context ↗ - Now: No benefit
Personally it’s the only thing that allows me a decent night’s sleep.
In context ↗
Read from 18 of their posts and comments; links to the 14 this page draws on
Summary
A Reddit user in r/cfs described CFS at the mild end of moderate, plus fibromyalgia, severe IBS and sinus problems. Working from home spared the commuting that had been destroying them, and cannabis was the only thing that eased symptoms and allowed decent sleep. Massage helped fibromyalgia pain without causing PEM, and daily electrolytes helped with sweating.
Ask Miruvor AI
What they tried
Also tried
cannabis (weed, edibles)· Helped a lotmassage· HelpedGatorade / electrolytes· Helpedbreathing exercises· Helpedhandheld battery operated fan· Helpedtablets for chronic sinus issues· No changeplant-based milk alternatives· No changecoffee / caffeine· Not said
Their words about each treatment
- coffee / caffeine · Not said
For me it doesn’t, so I drink one to two cups of coffee per day, just not any later than the afternoon so it doesn’t affect my sleep schedule.
In context ↗ - cannabis (weed, edibles) · Helped a lot
It’s been my saving grace over the last year, it’s the only thing I’ve found that eases my symptoms. ... I get a better quality AND quantity of sleep when I’ve had an edible that evening.
- massage · Helped
I personally NEEEEED a massage every so often ... I don’t find it draining at all, it never causes me PEM.
In context ↗ - Gatorade / electrolytes · Helped
I drink a 600mL bottle every day throughout the day ... the electrolytes (and water) really help with that
In context ↗ - tablets for chronic sinus issues · No change
I take tablets like that sometimes because I have chronic sinus issues, but they’ve never helped me with my CFS symptoms.
In context ↗ - breathing exercises · Helped
massage and breathing exercises help me sometimes when I’m in a bad crash
In context ↗ - handheld battery operated fan · Helped
A handheld battery operated fan for hot days has been a godsend.
In context ↗ - plant-based milk alternatives · No change
I’ve tried every alternative and it makes no difference - except for certain plant based milks can upset my stomach.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2022-03-08 | Working from home instead of commuting to an officeWorking from home (which I’ve been doing since before the pandemic, luckily) has changed my life.In context ↗ | Moderate |
| 2023-07-22 | Cannabis eased their symptomsIt’s been my saving grace over the last year, it’s the only thing I’ve found that eases my symptoms.In context ↗ | Moderate |
| 2025-01-17 | Still limited; cannabis the only thing giving decent sleepPersonally it’s the only thing that allows me a decent night’s sleep.In context ↗ | Moderate |
Adverse events
- Cannabis (THC, marijuana)“Except dry mouth - stay hydrated, people!” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
that’s the thing that can really mess you up and give you PEM if you’re not very careful
In context ↗ - Brain fog
my brain fogged out and somehow glossed over the part where you said you’ve GOT tattoos already
In context ↗ - Sleep problems
I get a better quality AND quantity of sleep when I’ve had an edible that evening
In context ↗ - Pain & fibromyalgia
I also have fibromyalgia
In context ↗ - Gut problems
I have severe IBS as well as fibro and CFS
In context ↗ - Temperature regulation
I get the hottest hands and feet and can’t seem to ever get them to cool down without dunking them in cold water.
In context ↗