Long COVID
Mild → relapsedIll 2.5 years before improving or writing
Long COVID with POTS and leg cramps, improved then relapsed after a sinus infection
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 2.5 years
- Last post
- Aug 2022
In their words
- Condition: Long COVID
I had Covid April 2020 and was a long hauler, it lasted 3 whole months.
In context ↗ - At worst: Mild
It took 3 months to get some semblance of life back but I’ve never been the same.
In context ↗ - Now: Relapsed
After a good 6 months of my long covid simmering down it has suddenly kicked off with a vengeance.
In context ↗ - Began after: COVID
Got Covid April 2020.
In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
Rain 18379 caught COVID in April 2020 and took three months to recover, but was left with allergies, breathlessness at altitude and POTS. Symptoms started days after a first vaccine dose in 2021 and worsened after the second, with deep muscle aches, and minor infections or Botox triggered long flares. By August 2022 a sinus infection had brought back fatigue, fever and excruciating leg cramps.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- ADHD medication · Helped
Some days mine helps a bit, other days it doesn't feel like I took any at all.
In context ↗ - albuterol inhaler · No change
my albuterol inhaler did nothing
In context ↗ - COVID vaccine (second dose) · Worse
The second dose seems to have cleared a lot of the symptoms I was having. But, after the second dose, these daily intense and deep muscle aches started
In context ↗ - botox injections for migraines · Worse
Had routine botox injections for migraines and the injection sites became swollen and created horrible aches for a month
In context ↗ - 2 antibiotics · No change
Despite being on 2 antibiotics and steroids nothing is making much of a dent.
In context ↗ - antihistamine · Not said
I just started the antihistamine + acid reducer and I'm really really hoping it does something.
In context ↗ - Aleve · No change
I've taken aleve, not much difference
In context ↗ - Advil · Helped
taken Advil, minor improvement
In context ↗ - rubbing my legs · Helped
I've tried rubbing my legs and it sorta helps but only temporarily
In context ↗ - heating pad · Helped
right now I have a heating pad on them which ends up overriding the pain sensation a bit
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| April 2020 | caught COVID-19Got Covid April 2020.In context ↗ | Mild |
| July 2020 | long covid eased after three monthsit took me 3 months to recoverIn context ↗ | Mild |
| after those 3 months (2020) | allergies, breathlessness on elevation and POTS appearedAfter those 3 months, my allergies were horrible for the first time in 5 yearsIn context ↗ | Mild |
| early 2021 | first vaccine dose started worsening symptomsSymptoms started about 5 days after the first dose of vaccine and keep getting worse.In context ↗ | Mild |
| April 2021 | second dose cleared some symptoms but brought deep muscle achesThe second dose seems to have cleared a lot of the symptoms I was having.In context ↗ | Mild |
| August 2021 | sinus infection flared covid-like symptomsCurrently I have a sinus infection and I have the exact type of fever I had with Covid beforeIn context ↗ | Mild |
| early 2022 | long covid simmered downAfter a good 6 months of my long covid simmering downIn context ↗ | Mild |
| 2022-08-17 | sinus infection brought long covid back with excruciating muscle crampsit has suddenly kicked off with a vengeanceIn context ↗ | Mild |
Adverse events
- COVID vaccination as treatment“Symptoms started about 5 days after the first dose of vaccine and keep getting worse.” In context ↗ Side effects
- COVID vaccination as treatment“after the second dose, these daily intense and deep muscle aches started and have continued to get worse. They're so bad that the pain keeps me from sleeping at night” In context ↗ Side effects
- COVID vaccination as treatment“I also suddenly have terrible allergies and my sinuses are inflamed and fluid is backed up in my ear.” In context ↗ Autoimmune or inflammatory flare
- Botox (botulinum toxin)“Had routine botox injections for migraines and the injection sites became swollen and created horrible aches for a month” In context ↗ Side effects
Symptoms mentioned
BreathlessnessFlu-like symptomsHeadaches & migraineMast cell (MCAS) & allergiesPOTS & dysautonomiaPain & fibromyalgiaSleep problemsTemperature regulation
Their words about their symptoms
- Temperature regulation
Currently dealing with fatigue, low fever, and these never ending muscle cramps.
In context ↗ - Pain & fibromyalgia
these daily intense and deep muscle aches started and have continued to get worse
In context ↗ - Headaches & migraine
a relentless headache that never ends
In context ↗ - Breathlessness
while driving I felt short of breath
In context ↗ - POTS & dysautonomia
and I developed POTs
In context ↗ - Mast cell (MCAS) & allergies
After those 3 months, my allergies were horrible for the first time in 5 years
In context ↗ - Flu-like symptoms
sore throat the entire time
In context ↗ - Sleep problems
the pain keeps me from sleeping at night
In context ↗