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Long COVID Moderate → near normalIll 4 months before improving or writing

Crushing exhaustion and pain with long COVID, nearly back to normal after a Moderna dose

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
4 months
Last post
Jul 2021
In their words
  • Condition: Long COVIDI had what I would describe mild COVID in early February of this year. In context ↗
  • At worst: Moderatewas unable able to walk for than 20 minutes ... I nap 3-5 hours a day. I sleep 10 hours a night. In context ↗
  • Now: Near normalTwo weeks after the second dose nearly all my symptoms were gone. I still have GERD and leg pain (especially when I walk too long) but I am so much better. In context ↗
  • Began after: COVIDI had what I would describe mild COVID in early February of this year. In context ↗
  • Says they never had: BreathlessnessI did not have breathing problems or a fever.
  • Says they never had: Loss of smell or tasteI never lost my sense of taste or smell.
Read from 5 of their posts and comments; links to the 5 this page draws on

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Summary

After mild COVID-19 in February 2021, Heron 52693 developed joint and neuropathic pain, insomnia and crushing exhaustion, napping three to five hours a day. An anti-inflammatory diet and a thyroid dose increase brought no relief. Two weeks after their second Moderna dose in May 2021 nearly all their symptoms cleared and they felt much better, though leg pain and GERD continued.

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What they tried

Also tried

strong antacid· Helpedanti-inflammation diet· No changethyroid medication hormone· No changeNSAIDs / pain medication· Not saidsleep medication· Not said
Their words about each treatment
  • NSAIDs / pain medication · Not saidBefore the vaccine I was in almost constant pain throughout my body. Was always popping this or that for pain. In context ↗
  • sleep medication · Not saidReally bad insomnia even with medication. In context ↗
  • anti-inflammation diet · No changeI started an anti-inflammation diet but found no relief. In context ↗
  • thyroid medication hormone · No changeHad a small increase in the medication hormone and so far no relief. In context ↗
  • Moderna COVID vaccine · Helped a lotBest thing I did was get the vaccine. Two weeks after the second dose nearly all my symptoms were gone. In context ↗
  • strong antacid · HelpedI am now on a strong antacid. That helps but I still get episodes at times. In context ↗

Approaches: Vaccination

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
February 2021mild COVID-19I had what I would describe mild COVID in early February of this year. In context ↗Mild
May 2021exhaustion, collapsing in the day, long napsI nap 3-5 hours a day. I sleep 10 hours a night. In context ↗Moderate
2021-06-10nearly all symptoms cleared after second vaccine doseTwo weeks after the second dose nearly all my symptoms were gone. In context ↗Near normalCOVID vaccination as treatment
2021-07-23much better but still leg pain, GERD and painful bloating episodesI still have GERD and leg pain (especially when I walk too long) but I am so much better. In context ↗Near normal

Adverse events

  • COVID vaccination as treatment“Yes I had a swollen lymph node under the arm each time I had a dose of the vaccine. The first time lasted longer since I had had COVID but I did have it with the second dose as well.” In context ↗ Side effects
  • “Might have been triggered from the high amounts of NSAIDS I consumed when dealing with the pain.” In context ↗ Gut side effects

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiaI still have GERD and leg pain (especially when I walk too long) In context ↗
  • Neuropathy & tinglingThe joint pain then moved to neuropathic pain In context ↗
  • Sleep problemsReally bad insomnia even with medication. In context ↗
  • Gut problemsThat helps but I still get episodes at times. In context ↗
  • Anxiety & low moodDepression was very bad. In context ↗

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