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Condition not stated Mild → no benefitIll for 5 years

Five years of constant fatigue and pain, iron infusion brought no relief

Condition
Condition not stated
At worst
Mild (working or studying, with limits)
Ill for
5 years
Last post
Aug 2024
In their words
  • Condition: Condition not statedAs of right now, I have no formal diagnosis to confirm my symptoms. In context ↗
  • At worst: MildI have been trouble working as my job requires consistent mental focus that it feels I am more increasingly not able to provide. In context ↗
  • Now: No benefitOver the last 5 years I have had increasingly worse fatigue that is constant In context ↗
  • Began after: nothing they could nameOver the last 5 years I have had increasingly worse fatigue that is constant In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Beacon 97004 posted in 2024, five years into increasingly constant fatigue, intense abdominal and digestive pain, joint and muscle pain and weakness. Anaemia and low vitamin D were found, and an iron infusion normalised their labs without easing their symptoms. They had no diagnosis and wondered whether ME/CFS fitted; they were struggling to keep up with the mental focus their job required.

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What they tried

Their words about each treatment
  • iron infusion · Not saidAfter an iron infusion my labs are still normal enough that I am left with no answers yet my symptoms are persistent In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y4 y5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2019increasingly worse constant fatigue and pain beganOver the last 5 years I have had increasingly worse fatigue that is constant, as well as intense abdominal pain, digestive pain, joint and muscle pain and weakness as well. In context ↗Mild
2024-08-08still undiagnosed, symptoms persisting and affecting daily life and workAfter an iron infusion my labs are still normal enough that I am left with no answers yet my symptoms are persistent enough that they affect my daily life. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Gut problemsintense abdominal pain, digestive pain In context ↗
  • Pain & fibromyalgiajoint and muscle pain and weakness as well In context ↗
  • Brain fogmy job requires consistent mental focus that it feels I am more increasingly not able to provide In context ↗

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Asking aboutBeacon 97004’s story

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