Long COVID
Severe → no benefitIll for 13 months
Long COVID with severe head pain and fatigue, largely bedridden and still getting worse
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill for
- 13 months
- Last post
- Oct 2021
In their words
- Condition: Long COVID
I was infected last week of July.
In context ↗ - At worst: Severe
pretty much bed ridden. Feel 2 percent of my old self
In context ↗ - Now: No benefit
I’ve continued to get worst for 14 months.
In context ↗ - Began after: COVID
I was infected last week of July.
In context ↗
Read from 45 of their posts and comments; links to the 21 this page draws on
Summary
A man in Florida developed long COVID after COVID-19 in late July 2020, with severe head pain, anxiety and suicidal thoughts while he could still golf. Fatigue and post-exertional malaise set in around month five and he became largely bedridden, feeling 2 percent of his old self by month eight. At 14 months he said standing up or walking far exhausted his brain, and he was still getting worse.
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What they tried
Also tried
Zoloft· HelpedLexapro· Helpedgabapentin· Helpedcalcium magnesium butyrate· Helpedcalcium magnesium butyrate· Helpedcymbalta· No changeanti histamines· No changeIvermectin· No changevitamin D 50000· Worseweed gummie· Worse40 different supplements from a holistic doctor· Worseexercise and pushing through activity (golf, walks, runs)· Much worse
Their words about each treatment
- exercise and pushing through activity (golf, walks, runs) · Much worse
pushed it exercising multiple times in month 5-6 then started getting PEM
In context ↗ - Zoloft · Helped
Went on Zoloft and got off of it after 8 weeks it helped the head
In context ↗ - vitamin D 50000 · Worse
I did take a 50000 vitamin D pill that seems escalated this problem worse
In context ↗ - Lexapro · Helped
Got back on another anti depressant and. It’s helped alittle all symptoms still there.
In context ↗ - gabapentin · Helped
I am on gabapentin which seems to ... Help alittle and cymbalta
In context ↗ - cymbalta · No change
I am on cymbalta I don’t see it helping that much
In context ↗ - weed gummie · Worse
Tried a weed gummie for first time since Covid and my brain was going nuts and couldn’t sleep
In context ↗ - 40 different supplements from a holistic doctor · Worse
my hollistic doctor keeps putting me on like 40 different supplements I feel more anxious and terrible taking them
In context ↗ - calcium magnesium butyrate · Helped
If I take this calcium magnesium butyrate my doctor gave me I don’t have it to bad.
In context ↗ - anti histamines · No change
The anti histamines don’t work only the calcium pill
In context ↗ - Ivermectin · No change
Same didn’t feel like I was getting better either
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| July 2020 | COVID-19 infection; still able to golf in the early monthsI was infected last week of July.In context ↗ | Mild |
| August 2020 | severe head pain, anxiety and suicidal thoughts beganIt started like 30 days after being positiveIn context ↗ | Mild |
| December 2020 | fatigue hit and pushing exercise and golf brought on PEMMy fatigue comes in month 5 and has be bedridden.In context ↗ | Severe |
| March 2021 | bedridden, dizzy, 2 percent of his old selfDizzy and pretty much bed ridden.In context ↗ | Severe |
| June 2021 | tremors and tingling somewhat less, still houseboundThey have gotten alittle better but still there alittleIn context ↗ | Moderate |
| October 2021 | still worsening; standing and walking exhaust his brainStanding up is a chore and my brain gets fatigued.In context ↗ | Severe |
Adverse events
- Vitamin D and sun exposure“I did take a 50000 vitamin D pill that seems escalated this problem worse I just stopped taking it” In context ↗ Made symptoms worse
- Vitamin D and sun exposure“Doctor ordered it for deficiency in viitamin D days later started shaking way more and head shaking was crazy still have it alittle” In context ↗ Side effects
- Vitamin D and sun exposure“Couldnt sleep and was waking up in panic with brain shaking” In context ↗ Insomnia from treatment
- Sertraline (Zoloft), Escitalopram (Lexapro), Duloxetine (Cymbalta)“Asked doctor he said it was the medicine. I stopped the medicine a month and a half ago and it never came back. Semen count was really low” In context ↗ Side effects
- “my hollistic doctor keeps putting me on like 40 different supplements I feel more anxious and terrible taking them” In context ↗ Side effects
- “If I take vitamins the pain in arms will go away but then I can’t walk and have crazy head symptoms” In context ↗ Made symptoms worse
- Gabapentin (Neurontin), Sertraline (Zoloft), Escitalopram (Lexapro), Duloxetine (Cymbalta)“I am on gabapentin which seems to Help alittle and cymbalta. But it Also causes tingling throughout all upper body and arms” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodFlu-like symptomsGut problemsHeadaches & migraineHeart symptoms & palpitationsNeuropathy & tinglingPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulation
Their words about their symptoms
- Post-exertional malaise
if I do something I get dizzy and relapse hard 6 months in
In context ↗ - Headaches & migraine
I feel like my head is tight and a weird non painful headache.
In context ↗ - Neuropathy & tingling
tingling through out body and internal tremors with twitching everywhere
In context ↗ - Pain & fibromyalgia
my whole body feeling absolutely sore as fuck
In context ↗ - Sleep problems
Couldnt sleep and was waking up in panic with brain shaking.
In context ↗ - Anxiety & low mood
Don’t see a reason to keep pushing anymore life’s over.
In context ↗ - Heart symptoms & palpitations
heart feels weird and brain will start to get inflamed in heat on minimal walking
In context ↗ - Temperature regulation
The heat intolerance is weird i get long foggy and drained
In context ↗ - Gut problems
my stomach felt so weird
In context ↗ - Flu-like symptoms
That flu like symptoms
In context ↗