Long COVID
Mild → relapsedIll 3 months before improving or writingNeeds ongoing treatment
Long COVID with brain fog: treatment helped, then gains wore off and infections worsened
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 3 months
- Last post
- Jul 2025
In their words
- Condition: Long COVID
then went back to my normal long hauler baseline
In context ↗ - At worst: Mild
they put me on lighter duties because I was unable to think straight or hold anything in memory for quite some time
In context ↗ - Now: Relapsed
I rebounded pretty hard and unfortunately when I went back on it it didn’t have the same effect.
In context ↗ - Began after: COVID
no hospitalization, no drop in o2, no issues with breathing or heart ... would be considered a very mild case of covid
Read from 53 of their posts and comments; links to the 30 this page draws on
Summary
A software engineer who developed cognitive long COVID after a mild infection in January 2020, with memory loss, word-finding trouble, tinnitus, insomnia and anxiety. Aspirin, statins, dexamethasone and hyperbaric oxygen helped for a time, but the gains wore off and later COVID and flu infections left them worse. Five years on they still had cognitive problems, poor sleep and tinnitus and relied on fasting, red light therapy and aspirin.
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What they tried
What they credit
acetyl l carnitine· Helped a lot · mainDecadron (dexamethasone)· Helped a lot · main · wore offred light therapy (and sunlight/NIR)· Helped a lot · mainaspirin· Helped · mainvit d· Helpedvit c· Helpedvit e· HelpedClairitin· HelpedPepcid· Helpeddaily exercise increasing in intensity· HelpedHBOT (hyperbaric oxygen therapy)· Helpedstatin (rosuvastatin / Lipitor)· Helped · main · wore offstatin (rosuvastatin / Lipitor)· Helped · main · wore offglutathione injections· Helpedomega-3· Helpedluteolin· Helpednicotine patch· Helpedketo· Helpedcomplete liquid fasting· Helpedsaunas· Helped
Also tried
brain training apps like Lumosity· Helpedmelatonin· Helpedfasting (one 300 cal meal a day)· Helpedmulti vitamin (iron, potassium, magnesium)· HelpedTelmisartan· HelpedPrednisone· No changeantidepressant· Worsenatto (whole food)· Worsestimulants· Worsemonoclonal antibodies (regeneron)· Much worseEmgality· Much worsehead movement exercises (vestibular training)· Not saidreading for pleasure· Not saidldn· Not saidfluvoxamie· Not saidamantadine· Not saidhigh dose antihistamines· Not saidbrain stimulation devices· Not saidcognitive therapy· Not saidspeech therapy· Not saidoccupational therapy· Not said
Their words about each treatment
- antidepressant · Worse
I’ve been on an antidepressant before covid, I’ve had it upped after covid with disastrous effects
In context ↗ - aspirin · Helped
I’ve been taking regular aspirin daily since I developed brain issues and it’s helped me.
In context ↗ - vit d · Helped
I’ve been taking aspirin, Clairitin, Pepcid, vit c, vit e, vit d daily
In context ↗ - head movement exercises (vestibular training) · Not said
Head movement exercises to work on the dizziness (vestibular training)
In context ↗ - daily exercise increasing in intensity · Helped
Daily exercise that has increased in intensity so as to not injure myself
In context ↗ - brain training apps like Lumosity · Helped
Those brain training apps like Lumosity have actually helped
In context ↗ - reading for pleasure · Not said
Lots of reading for pleasure.
In context ↗ - HBOT (hyperbaric oxygen therapy) · Helped
I did it for two weeks every day 1 hour per day... it helped but it was too expensive and I had to stop
In context ↗ - acetyl l carnitine · Helped a lot
Try acetyl l carnitine and a baby aspirin… these helped me tremendously
In context ↗ - Decadron (dexamethasone) · Helped a lot
a 3-4 week course of decadron 2mg twice a day last year that seemingly reversed most of my deficits
In context ↗ - Prednisone · No change
I was on decadron. Prednisone didn’t work
In context ↗ - monoclonal antibodies (regeneron) · Much worse
I got the monoclonal antibodies, regeneron, and I too, felt super terrible after that for at least two weeks
In context ↗ - Emgality · Much worse
within 5 days after receiving the injections my cognitive symptoms increased significantly
In context ↗ - statin (rosuvastatin / Lipitor) · Helped
statins actually helped my brain fog and fatigue a lot
In context ↗ - glutathione injections · Helped
Added glutathione injections because it’s a potent antioxidant
In context ↗ - ldn · Not said
trying different supplements, diets, and other medications including ldn
In context ↗ - fluvoxamie · Not said
other medications including ldn, fluvoxamie, amantadine
In context ↗ - high dose antihistamines · Not said
amantadine, high dose antihistamines, hbot, brain stimulation devices
In context ↗ - brain stimulation devices · Not said
hbot, brain stimulation devices, cogntive therapy, speech therapy, and occupational therapy
In context ↗ - cognitive therapy · Not said
brain stimulation devices, cogntive therapy, speech therapy, and occupational therapy
In context ↗ - speech therapy · Not said
cogntive therapy, speech therapy, and occupational therapy
In context ↗ - occupational therapy · Not said
speech therapy, and occupational therapy
In context ↗ - melatonin · Helped
problems with sleep which are mitigated with 1mg melatonin
In context ↗ - natto (whole food) · Worse
I’ve tried eating natto on its own and it just made me feel worse
In context ↗ - fasting (one 300 cal meal a day) · Helped
One thing I’m trying now that’s helping with daytime energy and mental clarity is fasting
In context ↗ - multi vitamin (iron, potassium, magnesium) · Helped
daily multi vitamin that contains iron, potassium and magnesium
In context ↗ - omega-3 · Helped
omega-3 specifically containing a dosage for optimizing brain health
In context ↗ - luteolin · Helped
luteolin 100 mg split twice daily
In context ↗ - stimulants · Worse
Stimulants would wear my brain out so hard I’d have to lie down
In context ↗ - nicotine patch · Helped
I too, feel better on 3.5 mg patch (7mg cut in half)
In context ↗ - Telmisartan · Helped
im on Telmisartan 40mg daily at night .. helps me to fall asleep
In context ↗ - keto · Helped
a mix of keto or complete liquid fasting
In context ↗ - saunas · Helped
mild hbot, saunas, sunlight/NIR therapy
In context ↗ - red light therapy (and sunlight/NIR) · Helped a lot
Red light therapy helps me tremendously
In context ↗
Approaches: H1 antihistamines · H2 blockers · Hyperbaric & oxygen · Alternative therapies · Amino acids and carnitine · Anticoagulants · Diet · Other drugs and medicines · Physiotherapy and rehab · Statins · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2020-01-07 | cognitive symptoms began after a mild COVID infectionJan 7 2020 was onset of cognitive symptoms...In context ↗ | Mild | |
| about 3 months in | decadron course reversed most deficits and they returned to workI literally did a 180 health wise. I was back to my normal self.In context ↗ | Near normal | Corticosteroid pulses |
| 3 months after decadron | symptoms returned after decadron was stoppedit took about 3 months for symptoms to come backIn context ↗ | Mild | |
| 2021-05 | two weeks of daily hyperbaric oxygen helpedI did it for two weeks every day 1 hour per day... it helpedIn context ↗ | Mild | Hyperbaric oxygen (HBOT) |
| 2021-05 | symptoms returned after stopping HBOTsymptoms returned after I stopped doing it.In context ↗ | Mild | |
| 2021-12 | back at work and able to function, but sleep and speech still impairedalmost a year in, back to work and can function but sleep has been ruined mostlyIn context ↗ | Mild | |
| 2022-01 | omicron infection cleared brain fog for two weeksmy big issue is brain fog and it went away almost completelyIn context ↗ | Mild | |
| 2022-01-21 | brain fog returned two weeks after omicronNow two weeks since and the fog has come backIn context ↗ | Mild | |
| 2022-04-08 | Emgality injections sharply worsened cognition and caused chest painwithin 5 days after receiving the injections my cognitive symptoms increased significantly and I started getting chest painsIn context ↗ | Mild | |
| 2022-05 | cytokine panel guided statin, higher aspirin and glutathione; cognition and sleep betterCognition is better taking statins and upping aspirin.In context ↗ | Mild | |
| 2022-11 | flu relapse; not the same sinceI had a relapse around November when I got the flu. I haven’t been the same since.In context ↗ | Mild | |
| 2023-04 | most cognitive issues persist, sleep completely shot, cardiac issues, breakupthe majority of the cognitive issues still existIn context ↗ | Mild | |
| 2023-04-16 | one 300-calorie meal a day improved daytime energy and mental clarityOne thing I’m trying now that’s helping with daytime energy and mental clarity is fasting.In context ↗ | Mild | Intermittent fasting |
| 2023-12 | nicotine patch and telmisartan eased brain fog, fatigue and sleepI too, feel better on 3.5 mg patch (7mg cut in half)In context ↗ | Mild | Nicotine patches |
| 2024-04 | benefits diminished; more memory impairment and new tics/convulsionsI’ve started to develop neurological ticks/convulsions along with an increase in working memory impairment.In context ↗ | Mild | |
| 2025-05 | red light therapy helpsRed light therapy helps me tremendouslyIn context ↗ | Mild | Red and near-infrared light therapy |
| 2025-07 | each new infection sets them back; uses fasting, sauna, NIR, aspirin and slow exerciseEvery new infection sets me back a little more. I don’t ever return to baseline prior to new infection.In context ↗ | Mild |
Adverse events
- Antidepressants (unspecified), Fluvoxamine (Luvox)“now, if I’m even an hour off of my regular dosing, I get really messed up with tremors and anxiety and cognitive impairment” In context ↗ Withdrawal problems
- Aspirin“the benefits have outweighed any concerns I had with stomach upset” In context ↗ Gut side effects
- Galcanezumab (Emgality)“within 5 days after receiving the injections my cognitive symptoms increased significantly and I started getting chest pains” In context ↗ Made symptoms worse
- Galcanezumab (Emgality)“within 5 days after receiving the injections my cognitive symptoms increased significantly and I started getting chest pains” In context ↗ Other
- Galcanezumab (Emgality)“I’m having increased memory impairment since emgality.” In context ↗ Made symptoms worse
- Galcanezumab (Emgality)“Also my mood and personality have been slightly altered as well” In context ↗ Mood or psychiatric effects
- Casirivimab-imdevimab (REGEN-COV)“I got the monoclonal antibodies, regeneron, and I too, felt super terrible after that for at least two weeks… then went back to my normal long hauler baseline” In context ↗ Made symptoms worse
- Corticosteroid pulses“The only side effects I have with dex is slight lack of mental concentration, increased agitation/sitting still, and problems with sleep” In context ↗ Side effects
- Corticosteroid pulses“problems with sleep which are mitigated with 1mg melatonin” In context ↗ Insomnia from treatment
- Corticosteroid pulses“Yes I relapsed and actually got worse because the rebound inflammation caused more damage” In context ↗ Made symptoms worse
- Nattokinase“I’ve tried eating natto on its own and it just made me feel worse” In context ↗ Made symptoms worse
- Antidepressants (unspecified), Fluvoxamine (Luvox)“my rounds with antidepressants and stimulants all resulted in paradoxical or exacerbating side effects” In context ↗ Side effects
- Stimulants (unspecified)“Stimulants would wear my brain out so hard I’d have to lie down.” In context ↗ Made symptoms worse
- Melatonin“I don’t feel rested at all the next morning and usually feel intoxicated from the melatonin” In context ↗ Side effects
- Antidepressants (unspecified), Fluvoxamine (Luvox)“I’ve had it upped after covid with disastrous effects” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogHeadaches & migraineHeart symptoms & palpitationsPOTS & dysautonomiaSleep problemsTinnitus
Their words about their symptoms
- Brain fog
my big issue is brain fog
In context ↗ - Sleep problems
Speaking of sleep, it’s completely shot. Can’t fall asleep or stay asleep.
In context ↗ - Tinnitus
I also have full blown tinnitus in both ears from covid
In context ↗ - Anxiety & low mood
extreme anxiety
In context ↗ - Headaches & migraine
headache brain fog and fatigue
In context ↗ - POTS & dysautonomia
slight dizziness upon waking and bending down to tie shoes
In context ↗ - Heart symptoms & palpitations
I developed cardiac issues this time around
In context ↗
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