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ME/CFS Mild → no benefit

Blood clot and headaches on exertion, still muscle aches after a 3 km walk with ME/CFS

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
Not stated
Last post
Sep 2024
In their words
  • Condition: ME/CFSHow do I pace myself? My muscles ache badly after a 3k walk and I usually rest for a week after. In context ↗
  • At worst: MildMy muscles ache badly after a 3k walk and I usually rest for a week after. In context ↗
  • Now: No benefitCan I even improve my stamina? In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

After a second COVID vaccine dose in 2022, Acorn 80751 had a blood clot in a finger, tingling and a numb toe, rapid weight gain and headaches with eye pressure on exertion; the tingling and numbness cleared within a month. By 2024 they had muscle aches after a 3 km walk, needing about a week of rest, and asked how to pace without giving up walks they need for mental health.

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What they tried

Also tried

exercise· Worsedieting· Not saidCOVID vaccination as treatment· Not said
Their words about each treatment
  • dieting · Not saidNow trying to slow this weight gain with dieting and exercise. In context ↗
  • exercise · WorseMy muscles ache badly after a 3k walk and I usually rest for a week after. In context ↗
  • COVID vaccination as treatment · Not saidSecond dose and I have been putting on weight. No change in lifestyle or diet. In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2022second COVID vaccine dose; blood clot in finger, tingling, numb toe, weight gain, headachesI had a blood clot on finger (nothing major but still concerning which went away after 2 weeks), rapid weight gain In context ↗Mild
2024-09-15muscles ache and a week of rest after a 3 km walkMy muscles ache badly after a 3k walk and I usually rest for a week after. In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseMy muscles ache badly after a 3k walk and I usually rest for a week after. In context ↗
  • Pain & fibromyalgiaMy muscles ache badly after a 3k walk In context ↗
  • Headaches & migraineI still have headaches and a strange pressure behind my left eye when I exercise for too long. In context ↗
  • Neuropathy & tinglingtingling toes and fingers (went away after a month) In context ↗

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