Bedbound with long COVID, now about 80% back to normal after aspirin and plasmapheresis
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2.5 years
- Last post
- Jul 2026
In their words
- Condition: Long COVID
Long covid, my recovery story :)
In context ↗ - At worst: Severe
Severe for around a year, maybe a year and a half. I was house/ bedbound, and unable to work.
In context ↗ - Now: Near normal
For me 80 is the new 100, im 80% back to normal, therefore thats my new life.
In context ↗ - Began after: COVID
I caught covid at work and due to the hospital requirements i was one of the first people to get the vaccine. Around that time i fell incredibly ill and tested positive
Read from 42 of their posts and comments; links to the 12 this page draws on
Summary
A nurse in Austria who caught COVID at work in 2020 and became bedbound with POTS, fainting, brain fog and PEM after pushing through work. A year of diet, supplements and pacing brought no progress; aspirin for microclots cleared her brain fog within days, and four rounds of plasmapheresis in September 2024 sped recovery. She called herself symptom-free in August 2025 and about 80% back to normal by July 2026, still taking daily aspirin.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- anti inflammatory meal plans · Helped
The diet worked well but it wasnt working well enough for me.
In context ↗ - herbal remedies · Not said
We went from meal plans (anti inflammatory) to herbal remedies and medications
In context ↗ - yoga · Helped
The Nervous Vagus i trained by pacing, yoga, breathing techniques and actively distracting myself
In context ↗ - pilates · Helped
im now stuck to pilates, 20mins daily
In context ↗ - pacing · Helped
The Nervous Vagus i trained by pacing, yoga, breathing techniques
In context ↗ - journalling · Helped
i started a journal. Wrote down how much housework, how many steps, how long i can concentrate
In context ↗ - jacobson · Helped
I did jacobson, mainly because i already knew it from work ... Jacobson was good
In context ↗ - Nattokinase · Helped
Nattokinase, yes! Before starting aspirin and then a few months both together.
In context ↗ - Bromelain · Helped
The nattokinase in combination with bromelain and stockings was my start.
In context ↗ - Curcumin · Helped
At first i took Nattokinase, Bromelain, Curcumin and Anti Thrombosis stockings.
In context ↗ - Anti thrombosis stockings · Helped
the stockings helped with pots and all the other supplements worked also well
In context ↗ - high dosage Vit D · Helped
all the other supplements worked also well
In context ↗ - Heparine · Helped
For me personally a fancy coated aspirin or heparine works better (a lot).
In context ↗ - Sulodexide Vessel 2500 · Not said
Also Heparin injections and Sulodexide, but this was a nightmare to order.
In context ↗ - Aspirin (T-ASS, acetylsalicylacid) · Helped a lot
after 3 days of Aspirin i felt that feeling of opening a window after doing some intense computer work, i could feel the fog disappearing
In context ↗ - Plasm apheresis · Helped a lot
I had 4 cycles of Plasm apheresis and in total 2 times of blood cleansing through it. Im healed :)
In context ↗ - drugs made from pig collagen and tissue · Not said
it was drugs made from pig collagen and tissue
In context ↗ - post infect powder · Not said
the last one was a powder/drink called "post infect"
In context ↗ - medication to lower pulse · Not said
Having access to medical supplies i medicated myself to lower my pulse and kept working.
In context ↗
Approaches: CBT & mindset · Anticoagulants · Apheresis · Diet · Mind-body practices · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2020, start of pandemic | caught COVID at work and fell illAround that time i fell incredibly ill and tested positive, i slept with pillows under my back because laying down made me feel like i was suffocating.In context ↗ | Mild | |
| a year in | moved to a stressful head nurse job and kept working with early POTSDuring that time i experienced my first pots symptoms which i couldn't just pretend werent there.In context ↗ | Mild | |
| a few months later | total physical crash, signed off workThen i had a total physical crash. Pots was constant, fainting, fatigue and no physical or mental recoveryIn context ↗ | Severe | |
| first year at the LC department | no progress in the first year of specialist carethe first year was painfully slow, no progress in sight, my brain felt sticky and foggy.In context ↗ | Severe | |
| after aspirin was started | brain fog cleared within days of aspirinafter 3 days of Aspirin i felt that feeling of opening a window after doing some intense computer work, i could feel the fog disappearingIn context ↗ | Severe | |
| about a year later | able to care for herself and her household againAlmost one year and Countless crashs later i was able to take care of myself and my household again. I could cook, wash, shower and hold conversations.In context ↗ | Moderate | |
| September 2024 | four rounds of plasmapheresis, recovery speed rose months lateraround 6 months after apheresis, my recovery speed went through the roofIn context ↗ | Mild | HELP apheresis / plasmapheresis |
| August 2025 | symptom free and working againToday: i am symptome free. I work, i have a normal people live and do normal people thingsIn context ↗ | Recovered | HELP apheresis / plasmapheresis |
| 2026-07-18 | about 80% back to normal after pregnancy with twinsim 80% back to normal, therefore thats my new lifeIn context ↗ | Near normal |
Adverse events
- “i did the exact and same and i crashed so hard XD. Ice done it multiple times, dont do it.” In context ↗ Made symptoms worse
- “Menstruation with blood thinners is on a whole different level:P ... the amount of blood and duration is both increased :(” Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I had PEM yes :) at times, i felt like i had no recovery anymore, mental or physical.
In context ↗ - Brain fog
my brain felt sticky and foggy
In context ↗ - POTS & dysautonomia
Pots was constant, fainting, fatigue
In context ↗ - Heart symptoms & palpitations
i medicated myself to lower my pulse
In context ↗ - Anxiety & low mood
Hopeless, depressed, no end in sight.
In context ↗ - Light & noise sensitivity
normal noises/ conversations made my head explode
In context ↗ - Gut problems
This was the pots, anxiety attacks, pulse spikes, gut problems, you name it
In context ↗ - Breathlessness
i slept with pillows under my back because laying down made me feel like i was suffocating
In context ↗ - Hair loss
Hair gummies from the drugstore and clip- in extensions
In context ↗
Ask Miruvor AI
Similar stories
-
Not enough detail to draw a path
Long COVID, barely able to walk, now much better; guanfacine with NAC eased brain fog
A man in his thirties fell ill with long COVID in June 2023 and spent the first months barely able to walk, sleeping much of the day and often in the ER. He suspected low-dose naltrexone caused an ER trip with tachycardia. Guanfacine with NAC eased his brain…
-
Bed-bound three-quarters of the day with ME/CFS, now about 80% after nutrition and pacing
Kite 81920 fell ill with long COVID in early 2020 and, after years of pushing through, became bed-bound for three-quarters of the day by 2024. From early 2025 they improved slowly with microbiome-focused nutrition, pacing, meditation and breathwork, reaching…
-
Bedbound with long COVID, now much better on low-dose naltrexone and Valtrex
They caught COVID in December 2023; by mid-2024 a crash after a trip left them bed-bound, unable to tolerate light or sound. Low-dose naltrexone, titrated slowly from 0.10mg to 1mg, plus Valtrex, beta blockers and other drugs, improved their baseline from…
-
Long COVID breathlessness and dizziness, much better with diet and nicotine patch
Acorn 48283, a 32-year-old man in the UK, developed long COVID breathlessness, dizziness and palpitations after a June 2022 infection, worst in December 2022. A whole-food, low-sugar diet, breathing exercises, fasting and a 3.5 mg nicotine patch helped him…