ME/CFS
Severe → no benefit
Moderate to severe ME/CFS with chronic pain, no overall benefit from cannabis or prazosin
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
I am diagnosed with Chronic Fatigue Syndrome and recently Fibromyalgia.
In context ↗ - At worst: Severe
For context I am moderate to severe and cannot walk very much without becoming lightheaded and out of breath and in extra pain.
In context ↗ - Now: No benefit
i have moderate to severe ME/cfs, fibromyalgia, chronic pain, etc.
In context ↗
Read from 13 of their posts and comments; links to the 10 this page draws on
Summary
From 2024 to 2026 they described moderate to severe ME/CFS with fibromyalgia, chronic pain, daily diarrhoea and sleep apnoea, needing to sit every 25 steps and renting a wheelchair for a fair outing. Cannabis numbed their pain and helped them relax, though they were trying a tolerance break; an office chair, bath pillow and CPAP were supportive only. Prazosin for nightmares caused a flare with racing heart and extra fatigue, and after about a month they were mostly bedbound that day.
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What they tried
Also tried
motorized carts at grocery stores· Helpedoffice chair· Helpedrented wheelchair· Helpedupping my fiber· Helpedweed· Helpedpregabalin· No changeprasozin· Worsecpap· Not saidbearable app· Not saidvit D· Not saida super anti-inflammatory· Not saidhydroxyzine· Not saidprozac· Not said
Their words about each treatment
- motorized carts at grocery stores · Helped
i use the motorized carts at grocery stores and that helps a lot
In context ↗ - cpap · Not said
using a cpap (which i use)
In context ↗ - office chair · Helped
having an office chair helps me get around the house
In context ↗ - bearable app · Not said
i also love the bearable app
In context ↗ - rented wheelchair · Helped
I was able to go so far and see so much without being completely exhausted
In context ↗ - vit D · Not said
they had me take a lot of it for a couple months and now i take the normal amount
In context ↗ - upping my fiber · Helped
I have tried upping my fiber which sometimes helps a bit
In context ↗ - weed · Helped
weed helps me forget about the pain/numbs it
In context ↗ - pregabalin · No change
ive tried a few different medications for pain like pregabalin which unfortunately did nothing
In context ↗ - a super anti-inflammatory · Not said
and a super anti-inflammatory as well
In context ↗ - hydroxyzine · Not said
im on hydroxyzine for anxiety
In context ↗ - prasozin · Worse
been on prasozin now for about a month. side effects have put me in a flare up. extra fatigue plus racing heart that gives me anxiety
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | diagnosed with ME/CFS, later also fibromyalgiaI am diagnosed with Chronic Fatigue Syndrome and recently Fibromyalgia.In context ↗ | Not stated |
| 2024-09-18 | moderate to severe; could not walk far, used a rented wheelchair at the fairI am moderate to severe and cannot walk very much without becoming lightheaded and out of breath and in extra pain.In context ↗ | Severe |
| 2026-10-09 | flare from prazosin side effects; mostly bedbound that daybut im EXTRA fatigued and today mostly bedboundIn context ↗ | Severe |
Adverse events
- “side effects have put me in a flare up. extra fatigue plus racing heart that gives me anxiety” In context ↗ Made symptoms worse
- “racing heart that gives me anxiety. thankfully the racing heart side effect is subsiding” In context ↗ Heart rhythm problems
- “I also have a bath pillow to help me when I can’t stand to shower (but that hurts my knees so I need a shower chair soon)” In context ↗ Other
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
cannot walk very much without becoming lightheaded and out of breath
In context ↗ - Breathlessness
cannot walk very much without becoming lightheaded and out of breath and in extra pain
In context ↗ - Pain & fibromyalgia
i have moderate to severe ME/cfs, fibromyalgia, chronic pain, etc.
In context ↗ - Gut problems
I have had diarrhea everyday
In context ↗ - Anxiety & low mood
im on hydroxyzine for anxiety and prozac for ocd
In context ↗