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Long COVID Moderate → relapsedIll 1 year before improving or writingNeeds ongoing treatment

Long COVID improved with nutrition and fasting, then returned worse after reinfections

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
1 year
Last post
Sep 2024
In their words
  • Condition: Long COVIDI got officially dx with long covid after a dozen specialists and tests In context ↗
  • At worst: ModerateI’m constantly fatigued and the brain fog is insane. All I want to do is sleep and nap. So much so it’s affecting my day to day right now. In context ↗
  • Now: RelapsedI had long covid before and got better after a year. Now, experiencing it again after having covid again ... Now the long covid symptoms are so much worse than the first two times.
  • Began after: COVIDThis is what I did the first time I had long covid, that was in 2020-2021. In context ↗
Read from 10 of their posts and comments; links to the 9 this page draws on

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Summary

Crane 38177 developed long COVID in 2020 and improved over about a year using nutrition, fasting and acupuncture. A 2021 vaccine reaction caused rare side effects, but they healed in a few months; COVID in late 2023 with pneumonia and a January 2024 reinfection brought long COVID back worse. A cleanse and fasting eased fatigue by mid-2024, but insomnia, brain fog and migraines persisted.

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What they tried

Also tried

organic grape juice and other antioxidant/polyphenol supplements· Helpedproper hydration· Helpedz-pak· Helpedmelatonin· No changeherbs given at acupuncture· Not saidfocusing on adrenal and liver health· Not saidCOVID vaccination as treatment· Not said
Their words about each treatment
  • quercetin · HelpedI have been taking quercetin and really focusing on clean eating In context ↗
  • clean eating, plant based, no caffeine, reduced fats · Helpedreally focusing on clean eating and proper micronutrients In context ↗
  • intermittent fasting · Helpedintermittent fasting helped me heal from the symptoms back in 2020 In context ↗
  • water fasting / longer fasts · HelpedI’m now venturing into longer fasts 24-72 hours and noticed the same effect at 24 hours. In context ↗
  • 9 day fruit and vegetable cleanse · HelpedI just finished a 9 day fruit and vegetable cleanse to give my system a break ... I feel so much better and less fatigue than I did before I started In context ↗
  • acupuncture · HelpedI went weekly for two years for the covid long haul symptoms In context ↗
  • herbs given at acupuncture · Not saidI can’t remember the names of the herbs but they were gentle. In context ↗
  • organic grape juice and other antioxidant/polyphenol supplements · Helpedincluding organic grape juice for the heart….eg a focus on antioxidants and polyphenols In context ↗
  • morning sunlight · HelpedProper hydration, morning sunlight. In context ↗
  • increased walking / movement · Helpedsmall steps for increasing movement everyday and slowly getting better In context ↗
  • focusing on adrenal and liver health · Not saidfocusing on my adrenal and liver health In context ↗
  • z-pak · HelpedI had to take a z-pak while traveling a few weeks ago and it cleared up. In context ↗
  • melatonin · No change15! Mg of melatonin and I’m still wide eyed. In context ↗
  • COVID vaccination as treatment · Not saidlooking VERY old and skin sagging on face and having arthritic pains after Covid vaccine In context ↗

Approaches: Alternative therapies · Diet · Physiotherapy and rehab · Supplements

Their path

Very severeSevereModerateMildNear normalRecovered12 mo2 y3 y4 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2020long COVID began after COVID-19 infectionThis is what I did the first time I had long covid, that was in 2020-2021. In context ↗Not stated
2021improved after about a yearI had long covid before and got better after a year. In context ↗Near normal
10/23COVID reinfection with pneumonia, hospitalisedWas pretty good until 10/23 when I caught covid again and developed covid pneumonia and then relapsed with covid again in 1/24. In context ↗Moderate
1/24second reinfection; long COVID worse than beforeNow the long covid symptoms are so much worse than the first two times. It’s unreal. In context ↗Moderate
2024-06-13fruit and vegetable cleanse eased fatigueBUT I feel so much better and less fatigue than I did before I started In context ↗Mild
2024-09-24worst sleep of their life; diagnosed with long COVIDI’ve had the worst sleep of my life all year from long covid. In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Brain fogthe brain fog is insane In context ↗
  • Sleep problemsI’ve had the worst sleep of my life all year from long covid In context ↗
  • Headaches & migraineWhen I eat anymore I get very bad migraines. In context ↗
  • Loss of smell or tasteMy scent and taste have come back, where the first time they took almost a year. In context ↗
  • Pain & fibromyalgiahaving arthritic pains after Covid vaccine but then all rebounded In context ↗

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