Severe ME/CFS, unable to move or feed herself, much better after chronic Lyme treatment
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving or writing
- 13 years
- Last post
- Oct 2019
In their words
- Condition: ME/CFS
at 15 years old I fell ill with severe (CFS/ME)
In context ↗ - At worst: Very severe
I was a zombie for the first 6-12 months: couldn’t move, couldn’t wash myself, couldn’t lift an arm to feed myself my mum had to bring the spoon to my mouth
In context ↗ - Now: Much better
Over the years I have improved and finally after finding the right treatment I am recovering from the CFS/ME. ... I am now finally in my late twenties and can see the finish line of recovery
Summary
Beech 55400 fell ill with severe ME/CFS at 15 and spent her first 6-12 months unable to move, wash or feed herself. After 13 years she was recovering, crediting intensive chronic Lyme treatment and antivirals at a US clinic plus UK prescriptions and therapy. A family conflict over her partner then left her not eating or sleeping, depressed and suicidal.
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What they tried
What they credit
Also tried
Their words about each treatment
- antidepressants · Not said
was just given antidepressants by a GP who told me ‘You’ll just be tired, not much else I can do’
In context ↗ - intensive treatment to clear the chronic Lyme · Helped
I had intensive treatment (not available in the UK) to clear the chronic Lyme
In context ↗ - anti virals · Helped
I was then put on anti virals to help my immune system clear the viruses it was unable to clear itself
In context ↗ - ketogenic diet · Not said
I find her “cure by diet” approach (which I’ve tried) a bit too extreme, difficult to maintain, and a lot less effective
In context ↗ - low-carb/sugar Mediterranean diet · Helped
I’m doing great on a low-carb/sugar Mediterranean diet personally
In context ↗ - female hormones · No change
she is against female hormones (doesn’t work for me I have PCOS
In context ↗ - therapy treatment at the Optimum Health Clinic · Helped
particularly for the therapy treatment they offer ... It’s really helped me a lot and continues to do so.
In context ↗
Approaches: Antibiotics
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 15 (13 years before Oct 2019) | fell ill with severe ME/CFS, bedbound and unable to self-careI was a zombie for the first 6-12 months: couldn’t move, couldn’t wash myself, couldn’t lift an arm to feed myselfIn context ↗ | Very severe |
| 2019-10-04 | recovering after US chronic Lyme and antiviral treatment, but depressed after family rejected her partnerOver the years I have improved and finally after finding the right treatment I am recovering from the CFS/ME.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Muscle weakness
couldn’t move, couldn’t wash myself, couldn’t lift an arm to feed myself
In context ↗ - Anxiety & low mood
I fall down the rabbit hole of depression and hit the suicidal bottom.
In context ↗
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