Long COVID
Moderate → much betterIll 5 years before improving or writingNeeds ongoing treatment
Long COVID with serious symptoms and two years off work, now much better on LDN
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 5 years
- Last post
- Oct 2026
In their words
- Condition: Long COVID
I'm long hauling 4.5 yrs almost 5 now.
In context ↗ - At worst: Moderate
i initially had to quit for 2 yrs while i fogured out what was wrong with me.
In context ↗ - Now: Much better
I feel 70% recovered sometimes I feel like 90% but the truth is I think I'm just better at managing my symptoms.
In context ↗ - Began after: COVID
i developed acne once I caught LC
Read from 42 of their posts and comments; links to the 28 this page draws on
Summary
Long COVID since 2021, serious symptoms from age 36. They left a six-figure job and were off work two years before returning full-time to an easier hybrid role. They credit LDN with greatly improving their baseline and Adderall, Zepbound and PEA with parts of it, and rate themselves 70-90% recovered. A routine acupuncture needle left right-side facial paralysis, partly reversed by PEA; brain fog, fatigue and dysautonomia persist.
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What they tried
What they credit
Also tried
tcm· Helped a lotPEA· HelpedAdderall Xr· HelpedCreatine· Helpedaspirin· Helpedzyrtec· Helpedzepbound (tirzepatide)· HelpedT3· Helpedvitamin b6· Helpedvitamin b12· Helpedmssage gun· Helpedprobiotic strains from Biomesight report· No changeb1 supps· Worsewater and dry fasts· Worsesemaglutide· Worsecholine· Worseacupuncture· Much worseL-citrulline· Not saidketo diet· Not saideye therapy· Not saidDry fasting· Not said
Their words about each treatment
- b1 supps · Worse
i took b1 supps but they were making me manic.
In context ↗ - acupuncture · Much worse
visit to the acupuncturist left me roght side musle paralysis on my head shoulders and face.
In context ↗ - PEA · Helped
It's the only thing that has helped the muscle paralysis in my face and head (post a routine acupuncture visit).
In context ↗ - Adderall Xr · Helped
Adderall Xr has been helping me a ton as well - but not 100% and without it my brain gets loopy again - even worse when i stop.
In context ↗ - Creatine · Helped
adderall, zyrtec, & creatine (sometimes aspirin) have been my go to for this.
In context ↗ - L-citrulline · Not said
I've added 3 new supps to my stack, PEA (for SFN), Creatine, and L-citrulline.
In context ↗ - probiotic strains from Biomesight report · No change
I supplemented the strains they told me were lacking and I was able to raise it 71.
In context ↗ - keto diet · Not said
even with fasting & Keto diet, can seem only to temporarily maintain.
In context ↗ - water and dry fasts · Worse
i feel both better and worse afterwards. i feel clearer and lighter, less inflammed, but i also get terrible pem.
In context ↗ - H1 H2 protocol · Helped
Long suspected I have Mcas as the H1 H2 protocol seems to help me.
In context ↗ - zyrtec · Helped
i started takign a zyrtec and have less reactivities now.
In context ↗ - semaglutide · Worse
i took a microdose of semaglutide for 2 weeks & had all the bad side effects including anhedonia/depression.
In context ↗ - zepbound (tirzepatide) · Helped
i noticed less inflammation within 1 week. super tired though.
In context ↗ - LDN · Helped a lot
LDN has helped improve my baseline greatly.
In context ↗ - tcm · Helped a lot
with tcm within 2 months i was eating again
In context ↗ - T3 · Helped
once i got put on T3 - i stopped feeling so cold all the time.
In context ↗ - choline · Worse
choline made me super sleepy and more disoriented mentally
In context ↗ - vitamin b6 · Helped
PEA, vitamin b6 & b12 helped reverse some of it but not all.
In context ↗ - mssage gun · Helped
i used a mssage gun which made it feel better but not gone.
In context ↗ - eye therapy · Not said
i was able to start therapy. its never been the same as before - but i dont struggle as much as before to see clearly.
In context ↗ - pacing · Helped
I know how to pace now I know which meds in which supplements are gonna help me for different symptoms.
In context ↗ - Dry fasting · Not said
i stopped bc i started getting odd heat patterns in my body and i looked it up and its a bad sign.
In context ↗
Approaches: H2 blockers · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | long COVID beganI've been long hauling since 2021In context ↗ | Moderate | |
| 2021-2023 | had to quit work for two yearsi initially had to quit for 2 yrs while i fogured out what was wrong with meIn context ↗ | Moderate | |
| 2023 | returned to work at an entry-level jobIt took 2 yrs start working again but im at an entry level positionIn context ↗ | Mild | |
| early 2025 | acupuncture left right-side facial paralysis1.5 yrs ago a bery routine acupunture needle on the right side of my head left me with right side facial paralysisIn context ↗ | Mild | |
| 2025-10 | baseline and some cognition improvedive gotten some of it back as my baseline has improved but i am not recoveredIn context ↗ | Mild | |
| 2026-01 | working hybrid, self-described neighborhood boundI call myself neighborhood boundIn context ↗ | Mild | |
| 2026-01 | crashed after a stressful moveI find myself crashing hard since I moved, but I expected that as the last month and a half of moving was really stressful and taxing on my LC bodyIn context ↗ | Mild | |
| 2026-03-22 | felt 70%, sometimes 90%, recoveredI would say that I feel 70% recovered sometimes I feel like 90% but the truth is I think I'm just better at managing my symptomsIn context ↗ | Mild | |
| 2026-07-01 | baseline improved greatlyLDN has helped improve my baseline greatlyIn context ↗ | Mild | Low-dose naltrexone |
| 2026-10-17 | vision clearer than before, though not back to normalits never been the same as before - but i dont struggle as much as before to see clearlyIn context ↗ | Mild |
Adverse events
- Thiamine / benfotiamine“i took b1 supps but they were making me manic.” In context ↗ Mood or psychiatric effects
- Acupuncture“visit to the acupuncturist left me roght side musle paralysis on my head shoulders and face.” In context ↗ Other
- Low-dose naltrexone“finally a covid doctor started me at .5 mg - it made me MORE tired. unbelievably tired.” In context ↗ Made symptoms worse
- Semaglutide (Ozempic, Wegovy)“i took a microdose of semaglutide for 2 weeks & had all the bad side effects including anhedonia/depression.” In context ↗ Mood or psychiatric effects
- Tirzepatide (Mounjaro, Zepbound)“the 1st shot gave me pem & i was worried but then 2 and 3 have been fine.” In context ↗ Made symptoms worse
- Tirzepatide (Mounjaro, Zepbound)“only bad side effect is sometimes im extra fatigued for 2 days post shot.” In context ↗ Side effects
- Amphetamine salts (Adderall)“i can guarantee a lethargic crash for the next 2 -3 days afterwards where aderall isn't so effective anymore.” In context ↗ Made symptoms worse
- Extended water fasting (3+ days)“i feel clearer and lighter, less inflammed, but i also get terrible pem.” In context ↗ Made symptoms worse
- Extended water fasting (3+ days)“i tried a handful of fasts, but panicked around the 2/3 day mark when I found myself feeling worse.” In context ↗ Made symptoms worse
- Dry fasting“i stopped bc i started getting odd heat patterns in my body and i looked it up and its a bad sign.” In context ↗ Side effects
- Choline“choline made me super sleepy and more disoriented mentally” In context ↗ Side effects
Symptoms mentioned
Brain fogGut problemsHeart symptoms & palpitationsMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPost-exertional malaiseTemperature regulationVision problems
Their words about their symptoms
- Post-exertional malaise
i also get terrible pem
In context ↗ - Brain fog
My brain fog has improved along with my baseline, but i still keep making dumb mistakes
In context ↗ - POTS & dysautonomia
i have dysautonomia
In context ↗ - Gut problems
i had awful digestive issues - kept vomiting anything i ate ro drank
In context ↗ - Neuropathy & tingling
around the same time i also developed tingly feet
In context ↗ - Muscle weakness
the only thign that has helped the muscle paralysis in my face
In context ↗ - Vision problems
i developed accomodative spasms
In context ↗ - Temperature regulation
once i got put on T3 - i stopped feeling so cold all the time
In context ↗ - Heart symptoms & palpitations
my heartrate is extra elevated
In context ↗
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